alanalynch
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by alanalynch
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ARCHIVED Always Waiting For This To Kill Me!
alanalynch posted a topic in Coping with Celiac Disease
Does anyone else out there ever think that maybe this is going to eventually kill them even though they are gluten free? I personally am always just expecting the day to come when I find out that yes I do have cancer. I'm only 31 but my mother died of breast cancer when she was 42 (too young) and we have a long list of illness's in my family. All of which... -
ARCHIVED Anyone From Toronto Canada
alanalynch replied to griffen169's topic in Introduce Yourself / Share Stuff
A support group would be fantastic. I'm in Toronto. Is anyone else nearby?? -
ARCHIVED Response From Enterolab
alanalynch replied to alanalynch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you access the Enterolab website you will see that 6 months gluten-free is definately not too late to test for intolerance. In regards to the controversy of using Enterolab, the post I put on today mentions their position on the previous 'wary' thread. Personally I think Dr. Fine is a pioneer in gluten intolerance, and as all the medical pioneers... -
ARCHIVED Response From Enterolab
alanalynch posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I emailed the thread 'wary of Dr Fine' Phyliss at Enterolab as she has always been interested in what people have had to say. I thought all those involved in that thread might be interested in her response. Dear Alana, Thank you so much for this information. I read it from top to bottom. Though I would love to provide my own response to many questions... -
Well in Australia my blood tests were considered enough for my doctor to tell me to stop eating gluten. Why is America being so anal about having the endoscopy???
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I think this was probably the main reason for me to use Enterolab too. That and the fact that I just didn't want to deal with any more doctors in person. I do still wonder sometimes about Dr. Fines tests, mostly if they might be disproven oneday, however I prefer to see myself as one of the pioneers willing to try something new in order to help things...
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Just imagine for a second that Dr Fine is not kosher, and that he doesn't exist, and that we all sent our poop off to some non-existent address while he partied in Tahiti with our money. I seriously thought about this after my positive results. I mean, its not like any of us have ever met him in person...or maybe ever will. The worst thing was when I realised...
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ARCHIVED Confusing Gene Test Results!
alanalynch replied to alanalynch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks George, I'm going to check it out now. -
ARCHIVED Confusing Gene Test Results!
alanalynch replied to alanalynch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I hear you on that one. NZ is so much quieter than Toronto and you can even park two cars outside your house if you want to! Plus there are trees and clean air, something definately lacking in Toronto. But I do like the big cities. Although you would think the bigger the city the more clued on they would be about something like celiacs, yet nope, they... -
ARCHIVED Could This Be Celiac
alanalynch replied to sickboy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Constant Fatigue - leading to anxiety as I have the feeling that I'm about to faint. Feeling light headed and dizzy - almost feeling detached from reality Very painful and sensitive teeth - although got all clear from dentist Seem to catch any bug that goes round and takes me ages to recover Pale sickly complexion with dark rings round eyes Weight loss... -
ARCHIVED Confusing Gene Test Results!
alanalynch replied to alanalynch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is so good you are doing well now too. I didn't even bother to weigh myself at the end there as I pretty much looked like a walking pencil. At 5'9" I really couldn't afford to lose the weight to start with. I am now however a healthy weight again and have actually gone back to study fulltime Interior Design at the ripe old age of 31! The way I figure... -
ARCHIVED Confusing Gene Test Results!
alanalynch replied to alanalynch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for your help Rachel and George. Yes I did have the antibody and tTg tests and they were positive. No malabsorption though. Its strange hearing you mention what you went through before you were diagnosed, I went through pretty much the same things. Anxiety, feeling terrible, not able to work. My doctors kept telling me it was all in my head... -
ARCHIVED Confusing Gene Test Results!
alanalynch replied to alanalynch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for replying Rachel. I didn't realise there were different levels of gluten intolerance, and I am actually quite glad I have this milder version! I had been worried about intestinal damage as I have to admit I'm not exactly the strictest gluten free eater...(pizza pizza gets me everytime) however I am working on changing this bad habit as it always... -
ARCHIVED Confusing Gene Test Results!
alanalynch posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am brand new to this website so if I mess it up I apologise! I noticed quite a few people on this site have used Enterolab before and wondered if anyone else had had the gene tests done. I did and I am totally confused as to what they mean!! My results were; Molecular analysis: HLA-DQB1 0603, 0301 Serologic equivalent: HLA-DQ 1,3 (subtype...