Kjblock
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Kjblock
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Fairly new here--diagnosed with celiac before Christmas, which gave me plenty to concentrate on medically speaking. A couple of days ago, I was also diagnosed with melanoma. They feel they have caught it early, hopefully stage zero, and I will be having the spot on my face removed in a couple of weeks. I know that malignancies can be more common in celiac...
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ARCHIVED Mast Cell Activation Syndrome (Mcas)
Kjblock replied to IrishHeart's topic in Related Issues & Disorders
Very intrigued to read this. I was considering this as a possible diagnosis because of unexplained anaphylaxis. However all the testing for this has been negative for me (including staining the biopsies from an endoscopy). Then I got diagnosed with celiac and the gastroenterologist said it may have been the cause all along (although it's not a typical... -
ARCHIVED Newly Diagnosed, Now Being Told It Is Not Celiac. Help Me Understand!
Kjblock replied to Kjblock's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've now spoken to my internist and also had a followup reply from the original gastroenterologist. They both said with the positive blood test, family history, and good response to gluten-free diet, they feel comfortable saying it's probably celiac. I believe my insurance will pay for genetic testing with a positive blood test and inconclusive biopsy results... -
ARCHIVED Celiac Without Many Digestvie Issues?
Kjblock replied to mom2allison's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My mom was diagnosed in 2007 or 2008 and she has never had digestive problems--her main troubles were joint pain, osteoporosis, and anemia (both of which didn't really respond to treatment until she went gluten-free). I was diagnosed in December and have had frequent tendonitis, like both elbows at once, in my feet, etc. Not sure if they are related but... -
New here, diagnosed a few weeks ago with positive blood test. Have had symptoms since 2007 and my mom has celiac. Had negative blood test in 2008 and negative biopsies in 2010. Symptoms worsened lately, mainly nighttime diarrhea but then happening more often. Also sometimes vomiting and low blood pressure and hives. All allergy testing was negative. But then...