aurora

Thanks everyone you are all so nice and helpful!

Thanks very much! I shall certainly look into that! I had no idea the gene test even existed!

I don't have celiac's but a gluten sensitivity but also have major bladder problems! does anyone know if there is a link? I had an endoscopy just to look inside my bladder and the bladder wall was very inflamed - has anyone else experienced this or is it totally unrelated? I have only just found out about the gluten thing so don't know yet if a gluten free diet will help or not.

  skbird said:

OK, so my gyne thinks I probably do have endometriosis and is going to start me on birth control - the ring (Nuring) which is inserted and left in for three weeks. After the first month or so I can start skipping periods and see if that helps me out.

I am having worsening bowel symptoms in a cyclical way, meaning that from ovulation on I am having more and more IBS. The past three days I have hardly eaten anything unless it's liquid (soups, etc) and the occasional toast or banana. I read this in an article today and it made my jaw drop:

Open Original Shared Link

Yipes! This sounds an awful lot like what has been happening to me. I have had relief of symptoms a few times, usually when I make a dietary change, things improve for a few months (the first 6 months of gluten free, for example) but then they start up again. I wonder if this is what's happening to me, and if it gets better when I change things but since it doesn't actually cure it, it catches up with me again and I get sick again.

Anyway, anyone else out there have bowel endometriosis?

Stephanie

<{POST_SNAPBACK}>

Well yes I do! In fact I had it everywhere but especially all over my bowel, I had it all removed. My symptoms were EXTREME pain, couldnt move (could sometimes crawl across the floor!) and vomiting sometimes. Also was in the bathroom most of the day around the beginning of period. EXTREME bloating, bad bad breakouts etc. All of this was before and during period. I had it all removed during a laparoscopy and everything seemed ok for a while but has been pretty painful lately and I've had heaps of other health problems but i only just found out about gluten sensitivity and my doctor (who I must say is not THE most helpful) seems to think there is a link there. A nurse mother of my friend who is a naturopath also says she says many many women who have wheat/gluten allergies and endometriosis. Not sure if this is all true or not but is an interesting thought. It will be interesting to see if this gluten free diet helps endometriosis symptoms now that it has all been removed as I am sure it wouldn't help if it was still there.

I went on birth control for a while (when I was about 15 - am now 18) for endometriosis and it didn't seem to help AT ALL - in relation to those speaking of birth control, but I guess it is all different for everyone.

Hello, forgive me if something similar has already been posted and if this is not in an appropriate section!

I was just wondering if there was anyone who knew some good links or anything for gluten sensitivity because all I seem to find is pages for Celiac's and I know this is also for people with celiac's but it is driving me a little mad. My experience with the doctor is as follows:

take a blood test

she calls me up and says oh you have a gluten sensitivity, don't eat gluten you don't have celiac's go look it up on the internet bye, and she hangs up

I also had a biopsy last year which did not show celiac's.

Is celiac's just a severe form of gluten sensivity or are they completely different - I am getting conflicting information.

Do you still have to be extra careful with contamination/crumbs/cosmetic products etc. if you just have a gluten sensitivity rather than celiac's?

Sorry if I sound completely ignorant but as you can see I had a VERY unhelpful doctor.

Thanks!