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Ember

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Ember last won the day on April 5 2014

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  1. Ember
    I am definitely doing that. I did it last time and I was puzzled with what I wrote lol brain fog does weird things. So much pain today, I hope in a few days to say, the pain is way down again Thanks SO much for your support
  2. Ember
    Wow, you really know your stuff - I am going back gluten free tomorrow, I can't stand the pain. I can't even make it up my stairs, I wish there was a way to show you my swelling. My ankles started swelling back in 09, my instep actually so even in Summer I've had to wear boots, my ankles feel like they are going to snap. Really nasty feeling. When I was...
  3. Ember
    Hi Nicole I just did the test and it's negative. I've not eaten enough gluten maybe, or I really don't have celiac and am gluten intolerant. Now I don't know what to do, all my swelling has blown back up, I feel so sick. Anyone with any suggestions, because I feel so stuck now.
  4. Ember
    Ah another Canuck I SO wish we could switch doctors but there are none, absolutely no one is taking new patients and tons without a doctor. We were recommended her by 3 people, I didn't think to look at her feedback which truly is appauling. I so wish I had. However, she is sending me to specialists and not getting it. I have horrid neuro issues anyway...
  5. Ember
    I think our sleep is about the same - but I nap in the evening, and sometimes it's 4 hours and I still sleep for 8. It really sucks. I've been trying not to 'nap' though and I do something to ignore the fatigue. It's awesome to hear how your sleep has changed I am very hopeful mine will change as well once I go gluten free again. I know the answer...
  6. Ember
    Hi - so nice to meet you. The bio card test is the same as the tests the doctor screens. It's 93.5% accurate. I purchased it at progluten.com Just went to my front door to see a sticky to pick it up after 5.45pm today Ah it's here. ahhhh - I don't know if I'm relieved or scared. I'll be seeing the gastro on May 6th. and go from there.
  7. Ember
    Now I know you understand me. I honestly thought I'd never find anyone who understood this fatigue. My husband tries to, others say, I get tired, but I want to clonk them LOL - they don't understand!! This fatigue is absolutely terrible. This afternoon, my hubby and I went through our entire kitchen getting rid of gluten. Not too much, but so many hidden...
  8. Ember
    Hi - thanks so much for responding oddly enough, I'd forgotten I did have a gastroscopy (before they did sedation so 20 years ago, was horrid) I had a diagnosis of inflammation of the duodenum, this was in my 20s as well. I know for sure there was no biopsy done, I didn't even know about gluten then. I am going gluten free again once I do receive the...
  9. Ember
    Thank you so much - I finally don't feel alone in this anymore. I had thought about the bone density, and figured I'd see the gastro first. I have osteo arthritis in my spine so I may ask my spine surgeon (who is far away, but worth seeing him) to order bone tests. I also have adhesive arachnoiditis which is in the inflammatory stage, it's caused by spine...
  10. Ember
    Hi everyone I'm new here, but not new to 'possibly' celiac or gluten intolerance. I live in Canada so it's been a difficult road. I'm 46 years old now, and oddly, I've read that this is the age when testing is finally underway. My family physician just on Tuesday refused to test me for celiac because my iron was normal. Here's a bit of history. I...
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