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several posters report that even after going gluten free they are not recovering. I assume you tried many things and want to mention only two just in case you don't know about them. Align is a different kind of probiotic and is frequnetly recommended for rebuilding gut flora for people with IBS. Aparently Aligh has bacteria that resemble flora of newborns...

thanks for your response, NoGlutenCooties. You suggest that I might be confusing symptoms with versions. I hope I am not. You offer, at the end of the first paragraph, that bodies react differently to protein and that these are just different symptoms. But possibly this is not correct because cealic is an auto-immune reaction and it would stand to reason...

the last two posts ask me to provide validation, medical research that supports the claim that celiac comes in different forms. To me that claim seems obivous. No condition that has 300 possible symptoms can be one. We do need validation for how to make distinction between celiacs -- which is not there yet and which, of course, I cannot provide. In general...

You say that there are 300 different symptoms of celiac -- indeed. but not one person has all of them. We have some and then we also tend to have other auto-immune problems. Science is not there yet, able to precisely differentiate between these possible sub-groups. but we who live with celiac, who have experience of it, can speak about our individual symptoms...

I am new on this forum, but not new to participating in medical forums, however. This was my first post and I want to react to the TONE in some responses I got. I want thank those who showed concern and say how much I appriciate their good will. But, in a few posts, whose authors are identified as MODERATORS, tone is quite agressive and their agression...

when you have gluten issues, it is not enough to stop eating gluten. there are other things you need to do, including modifying your diet further, beyond not eating gluten. you have autoimmune issues and very strict diet is a part of healing. what diet would fit you, I cannot say. people usaully start with strick paleo and add. gut flora is the second thing...

many thanks to all who responded. I know why going back to gluten is a bad move. I was looking for people who possibly have different experience. They might exist, you know. Thank you very much for responding to my post. I am not sure that your third sentence is warented though. I am trying to figure out if there are people who had different than...

on probiotics: align may be the one you want to try first. read about infantis and you will see the logic. then, slowly you can introduce others. i assume that your dr put you on a steroid. steroids have serious side effects and some of your symptoms may be attributed to them.

I am with Lisa and want to add casein as a possible cause of your tendon and joint problems. only when I went off dairy and nightshades, as well as gluten free of course, did I see improvement. good luck

have you tried probiotics? combination of culturelle, bifidus, acidophilus, and align infantis helped me a lot.

I was diagnosed with celiac 3 years ago. When I get gluttend I get horrible, three to four month long diarhea. Now, I've been doing well for about a year and am thinking of trying gluten. But before I make this possibly very stupid move, I wanted to ask for your experience. did anyone go back to gluten and was without symptoms or with minimal symptoms?...