brit16

MitziG - thanks for the reply. The reason I haven't updated is because we are in the middle of our gluten challenge. We are having more blood test ran at te end of Jan, and feb 6 we have an endoscopy and colonoscopy scheduled. Our first GI pretty much went straight to getting the biopsy, after the ttg igG was positive from our ped. He didn't even run any...

Thank you so much for the input. The things you are saying (too young to be growing that slowly, the test results not being "normal", are the reasons I still feel concerned.) I guess it is hard to trust your instincts when you have so many people (including doctors) saying everything is fine, we will just wait and see. When I express my concerns to others...

Wow, every clinic should be ran that way! I know Texas Children's is supposed to be a great hospital, but that is part of my complaint, they don't seem to be getting the whole picture. When he told me about the low IgA he basically said that he didn't know much about it and that I may want to see an immunologist. But couldn't even tell me if I needed a...

Thank you. I hear people talk about the "Mayo Clinic" all the time, but I guess I really don't know what it is or where it is located. I will look into that. We are currently going to "Texas Children's" which is a hospital that people come to from all over, but honestly I have not been impressed with my particular doctor. You are the first person that...

When you say explore additional food intolerances what exactly are you referring to? Thanks! He has not had any allergy testing done, is that something we should be looking into?

Thank you for the links..... I read through each one of them. Just wish I knew if I was "reading into things" or if there is a real reason to be concerned. Everyone seems to think that he is happy and looks "normal" so he must be fine, but I am not a paranoid mom at all, and I feel like there is something going on.

I posted a few months ago, concerned about my then 18 month old. He was having chronic diarrhea and did not seem to be gaining weight. We went through a lot of testing, with no real answers.... Test completed: IgG ttg --- 7.5 below 6 was negative (considered slightly elevated) total IGA --- low (can not use IgA based test) reducing substances...

Who would I asked for these test? The GI or ped? The GI has said he has ran everything he can run, now we just wait ad see. We already took him off gluten, but it has only been a day and a half.

I don't think so, I know there was a white blood cell count, the total iga (which I asked for), the celiac DNA test, and numerous stool test looking for malabsorption. What do these test tell you, sorry for the ignorance?

The GI will not repeat the biopsy for six more months. For us as parents, six months just seemed like a long time to do nothing. We were also thinking if there was an obvious change maybe he could be diagnosed without having to go through another biopsy.

No, no explanation. He just says that test isn't specific, and it could be just an infection.... If he had some bad infection shouldn't it be treated? I just don't get why he is blowing off that result?

Thank you so much for your thorough response. It was very helpful. I'm not sure why he seems to not be taking the igG test to mean anything, I think it is because it was a low positive. He told me he was going to repeat the test, but ended up doing the iga instead. ( before we knew he had low total iga) I was hoping he would repeat the ttg igG but when I...

All the results for our 19 month old son are in, and we are still left with no answers. His symptoms are no weight gain for about 6 months ( but no weight loss) and on and off diarrhea, green stools, etc. Test results: - ttg igG 7.5 with less than 6 being normal ("borderline positive") - total iga 19 normal being above 24 ( low iga) - reducing substances...

Thanks! I do plan on giving the diet a try at some point - just want to make sure we are done running any test first. He already had the endoscopy done and it was negative.... The thing that confuses me is that the GI doesn't seem to take the positive on the ttg igG that serious.....says it could have just been an infection or something that caused it...

Don't have answers for you - just wanted to tell you that we are going through the same exact thing right now. He is 19 months - constant diarrhea and although he weighs a "normal" amount (24 pds) he has not gained any weight at all in about 6 months. We are also trying to get answers through Texas children's. Who is your dr - we are seeing a GI specialist...