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Nikki~Nathan&Danielle

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Everything posted by Nikki~Nathan&Danielle

  1. Nikki~Nathan&Danielle
    Thanks for your replies. Now that we are eating entirely whole foods there is no soy in the diet anymore (and I don't buy tofu). So one less thing to worry about in the meantime. He had no dairy today and no eggs, so we'll stick with this for now and I'll speak to the paediatritian tomorrow about what he thinks (although I've found diet information...
  2. Nikki~Nathan&Danielle
    Just a quick update - I had ordered some blood tests from my own doctor after being diagnosed with the nephrotic syndrome (hospital/paed weren't interested in finding the cause of the problem so took it into my own hands) and the nurse just phoned to say he's got an egg allergy!!! And low in Vit D and zinc. There go the eggs.
  3. Nikki~Nathan&Danielle
    Thanks for all your replies! OK, so I will start with dairy elimination as of today and will chat to him about the nuts and eggs too. Since tomorrow we're likely to start the taper off the drugs, it would be a good time to see how he reacts to coming off it. I might reintroduce millet again since he quite likes that and it will be a good replacement...
  4. Nikki~Nathan&Danielle
    Hi, I haven't posted for a few years. My son was diagnosed with coeliacs 3yrs ago when he was 2.5yrs old and we have pretty much just cruised along like that since then. However, a few weeks back we were admitted to hospital and he was diagnosed with nephrotic syndrome (minimal change). I'm trying to research as much as I can to see if I can find other...
  5. Nikki~Nathan&Danielle
    Thanks for your encouraging commments. It does make me feel better than we are seeing the small changes. I didn't find my paediatrician particularly useful and in fact have learnt so much more on this site and maybe my knowledge and questions in response to his information annoyed him? Anyway, I'm glad I've got you all to help on this new journey.
  6. Nikki~Nathan&Danielle
    My 2.5yr old has been gluten-free for a few months now and I have noticed that his skin rashes have cleared (they were just eczema type rashes on his torso), his poop is slightly darker, now "sinks" most of the time, and more formed and down to about 3 a day opposed to 5-6. I was thinking this was quite good, but I'm questioning whether it is "enough" progress...
  7. Nikki~Nathan&Danielle
    I'm also in the "no milk needed" after weaning camp. Once my son self-weaned from breastfeeding at 14mths I didn't offer milk. He drinks loads of water. I did give him natural unsweetened yoghurt though along with his normal diet.
  8. Nikki~Nathan&Danielle
    I am completely into homeopathy and have seen remedies do wonder for both of my kids (and I no longer suffer asthma). BUT, I recently spoke to my homeopath when Nathan was diagnosed and wanted to know whether homeopathy would help our case - she said NO, the remedies will help with the symptoms but will never get rid of it completely (which totally makes...
  9. Nikki~Nathan&Danielle
    So I've been reading that this may show up also now that we've gone gluten-free. It's been 1 week and I think we've done really well, no visible changes yet, but the odd poop that is dark and "normal" looking (is this what happens in the early stages or the fact that it changes from pale to dark still mean he's likely getting glutened?). Our whole house...
  10. Nikki~Nathan&Danielle
    OK, so I'm just new to phoning and emailing companies about products we currently have in our house and I was checking sunscreen yesterday and emailed about this product. I got a reply, they tell me it's gluten free, but I kind of felt the reply was making out that I was a bit dumb for thinking gluten would be in sunscreen based on the first paragraph, here...
  11. Nikki~Nathan&Danielle
    Thanks! Wow, still a bit confused though...my mum is going to her doctor tomorrow to get a test done since she also thinks she's suffered for years. Her doctor has Celiac's, so she's going to ask his opinion on it too.
  12. Nikki~Nathan&Danielle
    Thanks everyone! Well fortunately it was a once off hissy fit, so maybe just a regular hormonal 2yr old day???
  13. Nikki~Nathan&Danielle
    My head is just spinning with questions at the moment and I spent hours last night lying awake in bed when I should have been sleeping..... Anyway, I've come across differing opinions on whether to introduce gluten to younger siblings. My baby will soon be at the age to introduce wheat (I actually already had given her a few regular crackers but stopped...
  14. Nikki~Nathan&Danielle
    OK, so I've read that people can be affected when they get glutened, but how about going gluten-free? We made the switch from lunchtime yesterday and all was well, he even slept through the night last night (that was a miracle in itself). But OMG, this morning it's like some crazy child has been unleashed - screaming, crying, disagreeable, not listening...
  15. Nikki~Nathan&Danielle
    Thanks for your replies. I can't believe how much I've already learnt in the space of 24hrs! We are committing to thid diet as of this weekend and will be making our house gluten-free.
  16. Nikki~Nathan&Danielle
    Wow, thanks for the time you've all spent replying to me! It's really appreciated and it's answered all those questions (for now), swimming around inside. We live in New Zealand and yes I am happy with my doctor and her approach to this (we are yet to be referred to a paediatrician who she did warn us will push for us to do the biopsy so I'm glad that...
  17. Nikki~Nathan&Danielle
    I've been doing a bit of reading here today since my 2.5yr old ds has just been diagnosed via blood tests as having celiac disease. My question is: up until now he's just had some symptoms (soft pale undigested food in his stools as the main symptom), when I read of others here having bad reactions when they've been glutened, is this just something that...
  18. Nikki~Nathan&Danielle
    Hi, I've been doing some reading on this forum today and would like some advice with my 2.5yr old son's results. The blood tests we had done are (excuse me for typing them out full as I'm not sure of all of the short forms that are referred to in this forum, so to save confustion will do it like this): Gliadin IgA - Negative Gliadin IgG - Weak Positive...
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