joannw

Across, that consideration really resonated with me -- my parents just went into assisted living and they don't have a lot of say in their care, even though my mom is knowledgeable and with it. It seems that over a certain age, people automatically discount a person's wishes and experience. The staff mean no harm, but the residents are organized to serve...

Stephanie, you are the first person to present an argument for a confirmed diagnosis! Since i backed into the positive celiac diagnosis and gluten-free diet because of bone loss and vitamin deficiency, and since children are not in my future, I still think I will forgo the scope-biopsy. The high blood test numbers show celiac disease, the diet has been effective...

All this input is so helpful and confirms my own thoughts! I hadn't thought about the expense of the gluten-free foods -- but I haven't used many pre-packaged "special" foods, just avoided foods with gluten and experimented with a few recipes. I am not impressed with the quality of the specially formulated gluten-free foods I have tried so far. I am going...

Thanks for explaining those numbers, Gemini. I thought I had no symptoms until I went gluten free -- then realized that my joints stopped aching, my skin improved, my color was better . . . and there was peace in my middle! I have only had gluten once since February (at an Indian restaurant -- so much is gluten free there that I got careless). I am not...

Took me a minute to find my way back here, waitingindreams -- thanks for your encouragement! Now that I know blood tests can keep tabs on this, I think I am going to go that route. My doctors are all very diligent about ordering every test in the book and referring me to other specialists -- a bit too much, really!

Thanks Gemini and Waitingindreams! The endocrinologist who ordered the blood test that indicated celiac referred me to a gastroenterologist and at her urging, I made the appointment -- then I started to question why. He can't do anything to cure it, after all, and I am not a fan of invasive procedures just to dot all the i's in my medical history. I haven...

Hi Waitingindreams I am looking for similar input -- diagnosed via blood tests in February, saw big improvements on a gluten free diet, and am now wondering if I should follow through with the biopsy or just keep doing what works?! How do you think an "official" diagnosis would benefit you?

Good morning, everyone! I was diagnosed with celiac via positive blood test back in February as part of a battery of tests to determine why I had no Vitamin D in my system. I immediately started a gluten free life and feel wonderful. I don't find it too restrictive, and can imagine eating this way for the rest of my life. I am scheduled to see...