CanadianK

Thanks for all your replies. It's been a topsy turvy week as I dealt with this disappointment, but I've come out the other side and I'm feeling ok with it all. Ultimately I know what I need to do. I realized I was also feeling challenged by certain family members doubting me and I just wanted proof/dr's approval to show this one person… I think I need to w...

Thx nvsmom. I had done that but really couldn't find what I was looking for. I'll keep sleuthing

In June I went to a Naturopath for all my gut/mental health issues and she ran a celiac test. The DGP IgA came back as almost positive. In the "normal" range, but where .9 was the positive, mine was .8. I had been gluten light for 2 years. So I decided I wanted definite answers. Went to my GP, got into a GI Specialist, and started the ball rolling. Colonoscopy...

I've been on the Specific Carbohydrate Diet for a few weeks now and I'm seeing great progress. Perhaps he has other deficiencies or adrenal fatigue… I've been enjoying reading and learning from this site lately Open Original Shared Link

Thanks for your reply @nvsmom. All of this is so fascinating for me and I feel like I can't get clear information. My Dr is hesitate to call anything, anything! In fact, she felt perfectly fine to put my 4 year old on reflux meds indefinitely rather than "disrupt the family with diet changes" Um, WHAT?! I politely declined and so now I'm taking it all...

I've been thinking about all these tests and what they represent, etc. as I've been waiting for my results. I was just under the cut off for the DGP IgA test .8 where .9 is a weak positive (however I had been gluten lite for years). I've now done my gluten challenge, biopsies and needle pokes (with papers in hand from this group about all the blood tests...

THANK YOU!! I called the lab and they keep kids blood for a month! I'm in the process of calling my Dr. to get her to add it in. I can't thank you enough!!

Hi all I was here awhile ago asking about blood tests and my daughters anxiety, etc. Anyways, I finally got her blood test done and the Dr called with the results but then said, there are no celiac results, but her IGA is fine. What?!? Turns out my dr. didn't specify on the form that she wanted the celiac panel, instead she just wrote IgA. I'm annoyed...

I just wanted to follow up here and add some info I was given. Just to preface this, my total IgA count is within normal ranges. And when my tests were done I had been gluten light for the past 2 years. I contacted the lab that did these tests and enquired about the kinds of tests these were since someone had commented about the reliability of the...

Thank you -- sleep was exactly what I needed. I woke up this morning realizing I was already on my way to being dairy free because since Jan I have been swapping out cow milk for almond or coconut milk. I do love my specialty cheeses but I'd rather feel good. Yogurt will be tough. Although I've been making my own and apparently after I've healed for a bit...

I just completed a 9 week gluten challenge today and did my endoscopy as well as the celiac serology panel (had 8 biopsies taken as well as all the blood work recommended by the many fabulous ppl on here!) I had a colonoscopy done a few months ago, and copious amounts of blood taken. I'm feeling overwhelmed and weepy after all of this. I think it...

Yes it is the same. Mine was called Lymphocytic Microscopic Colitis. There are two kinds: Collagenous and Lymphocytic (or others I'm not aware of?) LC is more closely related to celiac disease

I am just about to undergo the endoscopy to test for celiac since I was diagnosed with Lymphocytic Colitis and my GI said the LC is usually a symptom of a larger issue -- and closely related to celiac. She does not want to treat the LC until we know the celiac results because she said treating the celiac (gluten-free diet) will help the LC. I'm not entirely...

I'm genuinely curious here if there are long term negatives to NOT doing the testing on my daughter. I am in the process of celiac testing for myself after my initial blood work showed Non-Celiac Gluten Intolerance and just under the cut-off for celiac. I had been eating gluten light for 2+ years. So I'm currently on the gluten challenge and then doing...

I actually can't find the info as to whether or not this was the "deamidated* gliadin test. The test calls it an "Allergy IgG - Gluten (Gliadin)". It may be the old one, which is why I'm doing further testing… Again, I was gluten light for almost 2 years when these tests were done. I also had the Anti-Gliadin IgA which was just under negative. ...