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janedoe

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  1. They have done an EKG (determines if epilepsy is present), ultrasounds on my arteries and heart. I'm also on a heart monitor, I do not know if I said that already. The Vasovagal is when the blood pressure and heart rate become too low. This results in not enough oxygen to the brain, causing complications.
  2. The people in Boston do not think it is related. I am seeing a cardiologist and a neurologist about the vasovagal. To GFinDC, yes I said in my first post that they did try that but it made my symptoms worse and more dangerous. Also, I know I eat plenty. I have about 6 meals a day and eat much more than a regular person. I also monitor my water intake and...
  3. I do not know if any of you are still interested but they still haven't diagnosed me. It has gotten worse, I pass out every week and with other complications. They (cardiologist) do think it is Recurrent Vasovagal Synopsis, but there is no test for it. I am also going to a neurologist soon.
  4. I am seeing him in two days. Hopefully we will solve all of this! I also scheduled an appointment with the Center of Celiac Research in Boston just in case it was related to Celiac Disease and they would hopefully they would know.
  5. I am sorry for taking so long to reply. I have been eating the strictest gluten free diet the past ten years. I started when I was very little so I've never wanted to strive to eat gluten. If I even have a little gluten, I will feel it within 30 minutes and it is not pretty. I was pressured into the "leaky gut" diet but now I am on my first day off of it...
  6. I have been diagnosed with Celiac Disease over ten years ago, even when not much was known about it. Over the years, I have led a normal lifestyle up until about eight months ago (November). I started having changing symptoms including sharp pains that lasted for 5 seconds and would leave me stunned. In April, the symptoms changed, and became worse. I threw...
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