
LiveLoveLaugh04
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Hi all,
I need your advice regarding my problems with the left eye. I was diagnosed last May after being hospitalized (extreme dehydration caused by vomiting). So, they had to admit me since they were worried about my kidneys and had no idea what caused vomiting in the first place. I guess this was a blessing in disguise because for three years prior to this, I had various stomach problems but those doctors kept saying it could be stress (although I had no reasons to be stressed out). I am very strict about my diet. Unless it is written that is gluten-free, I do not eat it. Since October, I have been getting eye infections a lot. My eye looks bloodshot, sometimes itchy (not always), sometimes has a little yellow discharge, and tearing a lot. I also noticed that I do not see as well, esp. at night. Drs. gave me different eye drops, eventually it got better and than soon after, it would start all over again. My eye doctor even asked me: "are you sure there is a problem?" I am beyond frustrated and to be completely honest, extremely scared. I came across Sjorgen's syndrome and I am wondering if this could be it. Has anyone experienced this? If it is Sjorgen's, what is the best treatment for it?How dangerous is it? I am terrified of being diagnosed with something else. Next month I have to go for my check up with my gastroenterologist and I want to make sure to ask all the right questions.If you have any knowledge on this topic, please let me know. I would greatly appreciate your help. Thank you!
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Hi Elles, it is like you were reading my mind. I am sorry that you are also going through this and let's hope you are gluten intolerant rather than having a celiac disease until doctors determine exactly what is going on. Unfortunately, I was recently diagnosed with celiac and it sucks so i completely understand your
frustration. After 3 years of being sick on and off, I was throwing up so much a few months ago that I ended up in the hospital. I was so dehydrated that they had to keep me there for a few days in order to figure out what caused this reaction. Maybe it was for the best because prior to that none of the doctors could figure it out. They used to say it is stress related or I ate something bad, etc. In these 3 years, I noticed allergy on my face, loss of hair, dry eyes, lack of energy and concentration. I am pretty sure that people began thinking I was just making these things up. I hate looking at my old photos because I can see how much I have changed in those 3 years. Even before I had results of my gastroscopy/biopsy back, I decided to go gluten-free. Based on what I heard from my doctors (although they told me not to worry until I get my resuts since they were not sure what it was) I began reading about celiac and followed a strict celiac diet. I seem to be hungry a lot and I need to make sure I always have something cooked that I can eat. This is just an adjustment I need to get used to and not even once have I thought of taking something that is not labeled gluten free. I love food, I have always loved it but my fear of being stuck in the hospital again keeps me away from anything that could even possibly have gluten.
These last few days I have had headaches and lack of energy. I am unable to concentrate and I am irritable especially when it seems to me that my family does not really understand what I am going through. I truly do not think they understand how it affects me and it makes me feel that they also think that I use this damn disease as an excuse for my behavior. While I know that they are worried about me, I would hope that they would be more willing to learn about it instead of making comments that just upset me. Also something that seems so obvious to me, it does not to them.
I have a few questions that i hope you can answer for me:
Do you take any vitamins/mineral supplements and if so, which ones?
Can you recommend make-up, facial creams that are gluten free?
Can we get sick from using cleaning products, bleach, etc? How can i make sure that my laundry detergent is gluten free?
If you lost any hair, did it grow back and if so, how long did it take?
Has it been hard for you to go out with your friends?
Since i am still new to this, any advice would be helpful. I do not want people to feel sorry for me but i just need someone who understands what i am going through.
Bizarre Brain Symptoms?
in Coping with Celiac Disease
Posted
Hi, sorry to hear about these problems.
I have read that french fries that we can buy at McDonald's or other fast food joints, including frozen french fries bought at grocery stores, can contain gluten. I love fries so I make my own.
Also, the rash could be caused by milk. I am not 100% sure but I feel that I get it when I drink milk and eat sweet gluten-free food.
Good luck!