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Akayhu

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  1. I can relate to cutting all grain and be careful about airborne stuff.  Watch out for harvest time!  I had 30 years of symptoms after a bout with mono when I was 19.  I have been on quite a quest since 2007 (and a quest decades before that) to regain health.  I watch out for xanthum gum also, and my body can find guar gum and reject it.  My situation had become very complicated over the years and I didn't know at first to go gluten free.  After 8 months of gluten free I felt much better, but have continued making changes and improvements even after that.  I have hope for you that when you eat well and learn more, that you will be much improved too!  IF you ever need ideas of how to improve next; I could give you my list.  Each of us have a list, though, and each situation is different.

     

    I wish you the very best in healing.  Glad you figured out the celiac AT LAST!

     

    Dee

    Thank you..any list is much welcome..appreciate your time and to the others as well. Sorry you all suffer ,but glad I'm not alone  :unsure:

  2. Two weeks ago after Endo and colonoscopy was diagnosed with Sensitive Ceilac disease and IBS. I have suffered for 20 years at the least and started eating gluten free a year ago,and three months ago went totally grain free because corn and rice were also causing severe pain and issues. I don't eat xanthum gum or anything made of corn or rice either but I'm affected by air borne particules. I'm still suffering from pain even when hibernating at home free from air borne gluten just not as severe,how long could it take for it to leave my system? They are setting me up with a RA doctor for testing as well..I see that many say you have to be active gluten eating for test,it had been a year and they said I have it ..is that odd? The reason for Sensitive Ceilac diagnose was said because of air borne issue as well as other grains like corn and rice. 

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