ryannshelly

Hi everyone! My 10 year old daughter was diagnosed in January 2014. Initially, her antibodies were 218 and we have strictly adhered to a gluten free diet.  In May, her antibodies were 107 and she was feeling remarkably better.  Her test results this week reported antibodies at 95.  Still am improvement, but not as much as I was expecting given the large first drop.  Is this common to experience a large drop, then slower improvement?  Overall, she feels okay, not entirely pain free and we are currently on a bowel maintenance program to deal with constipation issues.  Any input is appreciated.

Update - we had a follow up appointment with our GI this week and will know the results of her blood work next week.  Hopefully her gluten antibodies are still creeping toward normal.  She does suspect constipation and put us on a bowel maintenance program, which we will start this weekend.  Fingers crossed it is helpful.  ArPlasma - I hope your son is feeling better soon and we both get the knack for finding these hidden gluten triggers!

Thank you all for your replies. She has had her thyroid checked, it came back okay. I also suspected constipation but x-Ray in September looked clear as well. She is very fearful of eating anything outside the home and takes food to school, but I will check again for any contaminants and non food culprits since the relapse appeared after school started. I'm less concerned about the lower abdominal pain since it hasn't even been a year since diagnosis and was more concerned by symptoms to foods we eat all the time (Orange juice, tomato sauce, beans). I hope the appointment next week can offer some help but my feeling is the GI doctor will push colon cleansing as the only remedy

No. No dairy products either and I'm confident she's not getting gluten

Hi. My 10 year old daughter was diagnosed Celiac January this year. She was doing great on gluten free diet and 6 months post diagnosis antibodies were 107, down from 218 with nearly no pain. Fast forward to mid September and now almost everything she eats causes bloating, chest pain and headaches. We've removed some suspected food intolerances from her diet (soy, orange juice) with some improvement, but she still complains of lower left abdominal pain constantly although chest pain and headaches have decreased. She has a follow up appointment with GI next week and I'm looking for possible causes/testing I can inquire about. She also struggles with constipation and takes a Miralax daily. Any advise is so appreciated