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littleburgy

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Everything posted by littleburgy

  1. littleburgy
    My blood test came up negative for celiac, but I'll be talking to the doctor later this month. I hated the gluten challenge so much I just don't want to chase a diagnosis anymore that may never come. I generally haven't been itching and scratching as much as I was before. I'm in a bind because I'm staying with my in laws for easter this week. I enjoy...
  2. littleburgy
    Thank you for your feedback! Did you get a test to find your food intolerances or did you do an elimination diet? At the moment my diet is pretty strict -- no soy, no dairy, no grains whatsoever. I very clearly had a reaction when I started my gluten challenge and put dairy back in my diet in addition to the gluten, that much I know. My eczema basically...
  3. littleburgy
    I have some gluten and food intolerance problems (no confirmed celiac diagnosis) and I have just finished the 2nd week of cutting out gluten, dairy and soy from my diet. I have suffered from hypothyroidism and anemia off and on for some time now. But my most annoying autoimmune problem is eczema. I had it as a child, it went dormant in my teens and 2...
  4. littleburgy
    Thank you for your support, everyone. I will be seeing everyone around. If nothing else it's been a good thing that I've finally pinpointed what's been causing my problems for so long. There's no better test than seeing how you react to what you eat. The GP did get some pretty thorough testing done but I will double check with her when I see her...
  5. littleburgy
    So my blood work came back negative for celiac. But I was positive for anemia and the GP wants to talk to me next month when I get back from vacation. She might request a biopsy, but I doubt it. And even then I may not get a positive on that. I've reached a point where I don't want to keep chasing a diagnosis that may never come and possibly isn't there...
  6. littleburgy
    So...I just had my blood tests this morning. What should I expect next? Can I go back off gluten? I will find out if anything is positive next week. If it is positive will I have to keep eating the gluten for more testing? If it's negative do I just throw my hands up in the air and just go gluten free anyway? (Keep in mind I'm in the UK on the NHS...
  7. littleburgy
    I'm doing better today. It may be just getting used to the way I was before. I felt so wonderful the 2 weeks I was off gluten it was like: WOW! And suddenly.... UGH! NO!!! Unfortunately I'm on the NHS in England and the GP may still want the blood test first before requesting any other testing. It wouldn't hurt me to ask, but they're a bit bureaucratic...
  8. littleburgy
    Is there a possibility I could cut this challenge shorter? I had been off gluten about 2 weeks. Prior to this I was eating it all the time. For example maybe just get the levels back up for a couple of weeks and then get a test?
  9. littleburgy
    So I'm now on day 3 of my challenge and if I ever doubted I had a problem with gluten, I am not now. I was only off the gluten for about 2 weeks and I'm a little surprised at how uncomfortable and crummy I feel. As I understand it, the longer you are off the gluten, the worse it is to go back on. I am having a hard time with this today. Do the symptoms...
  10. littleburgy
    I'm on the challenge right now. I'm pretty sure the consensus is it's about length of time that gluten is in the diet and how much is eaten can't shorten it. Some people like to load up on the gluten as a "send off" but that can cause problems for others. I've discovered very recently that my laundry detergent was also aggrivating my skin, so just as...
  11. littleburgy
    Thank you for the info! Your skepticism and frustration with doctors is understandable. From personal experience of losing my mom because of a doctor's negligence -- with some exceptions, I still have a hard time trusting them in general. I'm going to continue forward because the doctor will be testing other things and is willing to look into helping me determine...
  12. littleburgy
    Where did you get these statistics? If that's the case, it sounds like my challenge and upcoming blood test will just be a waste of time, then. I'd probably have to get a separate referral to the dermatologist and do a separate challenge. Everything I'm hearing about false negatives and sketchy biopsies makes me wonder if I should even bother...though...
  13. littleburgy
    I haven't had a formal diagnosis of DH, sorry if I have not made that clear -- I've modified my previous post -- it's something that I suspect. I've had these ulcer-like sores, they're raised like warts or blisters, that fit all the descriptions of DH but I have not had it biopsied. I may get a referral and discuss my options with the nearby dermatologist...
  14. littleburgy
    Well, I have no desire to gorge myself on gluten and carbs. For me it's like alcohol. I used to love to drink, and when I was younger, I would drink a lot. Now I rarely drink at all because I hate the way alcohol makes me feel the next day and I just don't have the same tolerance anymore. When eating certain foods make me start to feel like crap, I lose the...
  15. littleburgy
    I hadn't been gluten free save for almost the last 2 weeks...does this help at all? Is this one of those things where it builds up and goes down gradually? I'm a gluten noob
  16. littleburgy
    I spoke to the doctor this morning and I will be undergoing the gluten challenge and taking a blood test in about 6 weeks from next week (I want to enjoy one more weekend of feeling great...) First of all, where are some good resources on how much gluten to take daily for the challenge? I'm new to understanding gluten sensitivity -- do you experience...
  17. littleburgy
    The other issue is that I suspect I might also be developing issues with dairy. At first I thought "But I've never had lactose intolerance!" but then I just read that dairy intolerance can also develop over time with the celiac disease. I'm going strictly diary free this week to see how I feel. I'm in the UK on NHS so I'll probably have a while before...
  18. littleburgy
    I'm new to this forum. I've decided to register here because I have realized over the weekend that I might have Celiac disease and I'm going to be talking to a doctor next week. Personally, I find it a shock to even type it out. At the very least, if it isn't celiac's, something is going on with what I am eating. At the very least, I believe it involves gluten...
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