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jaggirl47

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by jaggirl47

  1. jaggirl47
    I have a feeling it will be tough to find info lol. I know my son's endocrinologist is upset we are going to GI. I ran into him when we were at the appointment and all he said is he doesn't know why we have a GI appointment because he already ruled out celiac. All I said is I would rather not leave a stone unturned because the current plan hasn't worked...
  2. jaggirl47
    Does NCGS have the growth issues as well? Going off gluten he grew just over 3/4" within a few weeks. I am interested to see if he stops growing again when we restart gluten this weekend.
  3. jaggirl47
    Thank you. He wants to do biopsies on the esophagus and stomach as well to check for other possible disorders. He isn't as concerned with the negative blood tests as the pediatrician because he is aware of the possibility of seronegative Celiac. I just want to make sure my son get the best opportunity of diagnosis if he does in fact have it.
  4. jaggirl47
    So this says 2 weeks with a half of a slice of bread and others say 6-8 weeks with 2-4 slices. GI says it basically doesn't matter. So confusing!
  5. jaggirl47
    I am adding the link to my other thread at the bottom of this for easier access to the back story. GI yesterday withdrew several vials of blood for more testing. He said, regardless of the results from the blood tests, that he feels my son is having some sort of malabsorption issue whether it is Celiac or something else. However, he also said there is...
  6. jaggirl47
    So we just got home from our GI visit. The doctor said he highly suspects something involving malabsorption and very possibly celiac. He said just by looking at him he can tell something is wrong. While his BMI is in the 10th percentile for his height and weight showing he is not wasting away, he is extremely thin with low muscle mass overall. The doctor...
  7. jaggirl47
    Will do! Thank you!
  8. jaggirl47
    I add butter to a lot of his foods, generally after cooking because my youngest does not need the extra calories. He gets whole milk yogurt. He refuses most things cooked with heavy cream and he hates cheese with a passion. He is very picky so it tends to be very frustrating lol. He will eat peanut butter but won't touch nuts. I will definitely look up fat...
  9. jaggirl47
    I should add too that I pack all of his lunches and snacks. His pediatrician wants him almost doubled in calories so he eats 6-7x a day. I am fighting with the school to allow him his mid morning and mid afternoon snacks. I am now waiting on his doctor to fill out a school medication form allowing food. This is a sample of his daily meal plan: Breakfast...
  10. jaggirl47
    None of his doctors are concerned in the least bit with any of his abnormal results. The endocrinologist feels that since his IGF-1 is still in the reference range, albeit in the low normal, that there is no concern. I had to fight to get a new urinalysis for him in January. I was informed over the phone that his urinalysis was normal so I picked up the lab...
  11. jaggirl47
    Greenbeanie, thank you for the links. I will dig through them all this weekend and make notes with relevant info. nvsmom, he had full testing, not just the standard growth hormone. Here are his test results from September. He does need more in depth thyroid testing but I'm not sure if GI will order it or if I will have to fight his endocrinologist. His...
  12. jaggirl47
    The big problem we have is unless he is actually diagnosed with something the schools do not have to follow it. I am still not convinced that the blood tests are accurate, especially after searching the site and finding many members that were negative on blood tests but positive on biopsy. Would it be worthwhile to do the genetic test and then if he comes...
  13. jaggirl47
    The gluten panel they did (we are military and it's like pulling teeth to get much done with Tricare) is as follows: Test Result Ref Range Gliadin Ab IgA 1.6 >7 neg, 7-10 equ. <10 positive Gliadin Ab IgG 0.9 >7, 7-10, <10 TTG IgA ...
  14. jaggirl47
    Thank you! I will start picking through your info. I am trying to absorb info and make as many notes as possible so I don't miss a question on Monday.
  15. jaggirl47
    Hello everyone. I am glad I found this forum so I can pick the brains of everyone here I have a 13 year, 8 month old son that I strongly suspect to have Celiac. We have had issues from the time he was a few weeks old. I will start from the beginning and run through everything. When my son was born I began with regular breastfeeding. After about ...
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