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Starlight2222

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  1.   On 3/14/2015 at 11:19 PM, cyclinglady said:

    I think I will stick to scientific-based tests. Here is some interesting information about Enterolab and why their testing is not considered valid by celiac disease industry experts:

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    https://www.celiac.com/gluten-free/blog/856/entry-1546-enterolab-a-scientists-viewpoint/

    Yes, the reason I was left in illness for almost a decade, was the failure of the "celiac" disease "industry experts" to understand non-celiac (different gene) gluten sensitivity.  I posted this to help the people who visit this site, with negative "celiac" tests, but with symptoms that are undiagnosed. Enterolab is scientific, and Dr. Fine is a trailblazer, again, he saved my life.  He doesn't believe in waiting for celiac disease to damage your gut to the extent that you can get a positive blood result before being diagnosed; his tests can catch the diagnosis before it gets to that stage in some people, as well, catch it early for other people who have a gluten sensitivity gene...there will be many variations depending upon a person's diet...and the sad part, is that more than half the population do have this gene.  Again, it seems good to have the blood test as well for some people who prefer to test how far their disease state has progressed, but for others, especially those with another gene (whose small intestinal intergrity has more protection, and are non-celiac), the blood test will be more often negative.  Celiac and non-celiac people are in the same boat, a vast desert with few safe foods, and constantly in search of foods that won't sicken them...we need to find every avenue to get tested, and Enterolab is a certified lab with scientific testing, and it pains me to think anyone in this forum could not be open to it after someone says it saved their life.

  2. Get tested through Enterolab; otherwise your doctor will just be testing for Celiac disease.  Enterolab.com tests for all forms of gluten sensitivity, and it is a stool sample and gene swab from your cheek...done through the mail.  I had a negative blood test through my doctor, so went undiagnosed for many more horrible years, because i was NEGATIVE for celiac.  I have non-celiac gluten sensitivity..and related caseine intolerance.  The media fails to inform the public that this type of testing has been around for many years and is accurate.  It saved my life needless to say. I sound like an advertisement, but it pains me to see millions of non-celiac people suffering, and being misled by doctors who have no knowledge of what to do.  Again, don't waste time doing elimination diets, get the test, get the test, get the test.

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