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dwhite42

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Everything posted by dwhite42

  1. dwhite42
    So we went to see a Gastro Consultant today and feel rather up and down. We went through history etc and he did a bit of a poke about with her belly. His initial thoughts were that no she wouldn't be coeliac. However he was rather confused with the doctor only ordered an Anti TTG test and only a FBC. He has however ordered a full range on tests such...
  2. dwhite42
  3. dwhite42
    lol! love the picture!
  4. dwhite42
    Ahh thats very kind to ask Squirming Itch. She seems to be taking it well, better than me. I am so impatient thats my problem, like a dog with a bone! She seems to be worse since she had the week off of gluten but am not sure whether she is more in tune with what is happening in her body and is listening. I think she would be extremely good on the diet...
  5. dwhite42
    lol Squirming itch about it not standing a snowballs chance! I think you are very right about it not being infected, think the doctor really doesn't have a clue. I think the weeping and she has been scratching and making it bleed and as you say its on full DH attack! Just wondering if all of you used to have a particular type of gluten food that hit...
  6. dwhite42
    He also gave her some antibiotic cream and some other cream to help the itching (steroid). Should I use or not? Not really wanting to use the steroid cream as it lessons the result but would antibiotic be ok? I am thinking if we can't get it done via private healthcare we will see if we can pay ourselves to see a Consultant as that would speed up one part...
  7. dwhite42
    I know Squirming Itch. Yes we are in the UK and its all about money, I do wonder if thats also why they don't want to diagnose as it means free prescriptions! I don't care about that to be honest, (although it would help with the cost of oats!) I just want it on her medical records so that in future if she has issues it is medically recognised and that...
  8. dwhite42
    Well we went to the doctors today and confirmed that he seemed very related to gluten. The next step he said would be for her to go on a gluten free diet. As gluten was the problem that was how to deal with it. I explained this was a serious condition which needed to be recognised by medical people and that needed to be on her record. I explained that...
  9. dwhite42
    Well thats good to know it took 6 months to lower. Perhaps I am being too optimistic! Also sounds very much like my middle daughter with her vocabulary issues and slower processing! My sister is terrible, once it was so bad that when we visited my nan in hospital I think the staff didn't want to let us in as they probably thought she had been drinking...
  10. dwhite42
    I will make sure she is well and truly armed and will be expect a full print out report from her when her tests are completed! Its all very strange and not that I am trying to pin it on all of my family members but I have suffered very badly with migraines since I was pregnant with my son who is now 7. Doctors have not been particularly helpful and the...
  11. dwhite42
    Wow thank you, the more I read the more fascinated I am! I love the "Celiacs are enigmas" and it does seem they are like snowflakes. I cannot believe in all that I have read that we are still seeing such reluctance from medical professionals. I have been talking to my sister about this as the more and more I find out, I am convinced she is celiac. Especially...
  12. dwhite42
    Thank you Squirmingitch, just found your post, didn't realise I had a page 2! Jut getting used to the layout. Very interesting Frieze and there are other issues which my middle one has which is really making me question. She apparently was born with this hair sized area in her heart which the electro pulses jump into and and get stuck on a circuit...
  13. dwhite42
    I love this! "Children in a family are like flowers in a bouquet: there's always one determined to face in an opposite direction from the way the arranger desires." ~Marcelene Cox
  14. dwhite42
    That is very interesting! Makes me want to get my husband checked as he has terrible trouble with his teeth, oh and also with his feet !
  15. dwhite42
    Oh and while I am in the flow, I have also read that teeth can be effected. She is my only child with "bumpy teeth" which go very yellow as staining sticks to her teeth. She has had this from a very young age. Also had to have a tooth out when 8. (Now my middle child would eat sweets and chocolate if allowed until they came out of her ears and loves anything...
  16. dwhite42
    Thank you all very much for advice and links. I am going to print off and highlight and I already have a notebook with snippets written down! My TIGERESS will come out and protection mode on! I am sure with the mention that we should be able to go private might spurn on a letter to recommend her to a ped gastro consultant (as it did for her second MRI...
  17. dwhite42
    Thank you both for your replies, I am really touched by all the help. The skin starts to itch before the "rash" appears. She experiences an intense itch and can't stop scratching and she said if it gets to cold or hot it feels like its burning and stings. The rash is pretty much bilateral. She has had flare ups quite a bit through the last year but...
  18. dwhite42
    Thank you for you reply squrimingitch. It did actually bring a tear to my eye as I feel deep down that she is but they make you feel so stupid when you go in. My other child recently had been diagnosed with a rare Arrhythmia condition, whereby the doctors made me feel I was barmy as I knew something was wrong (good old mothers intuition)! They tried so...
  19. dwhite42
    Hi all I was wondering if you could help me. I believe my teenage daughter is Coeliac. She has a skin condition which the doctor, try as he might cannot rule out that it is Dermatitis Herpeformas. When I requested a blood test, one of the doctors was very dismissive and said it was a fungal infection despite me listing lots of other issues and also...
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