KBart

Unforunately, we haven't had much luck with the SIBO stuff either. It's so frustrating. Our GI would only do one round of Flagyl. It helped...but I don't think it totally got rid of it. She even did a repeat Endoscopy (to confirm celiac disease because of inconclusive results before) and they did an intestinal aspirate (tested the fluid in the intestine...

I have low hopes the OP will see this, but did you ever get results back? My daughter is getting breath tested in 2 weeks and I highly suspect SIBO. Her symptoms are exactly the same.

My understanding is false positives are possible due to other autoimmune diseases and liver issues. I don't think most doctors will diagnose based solely on TTG levels unless it is really super elevated. Many still require a positive biopsy. I've read some will diagnose based on positive blood test, positive genetic test, reduction of symptoms on a gluten...

So our second doctor says she can't say it's celiac either. Not definitively. Interestingly enough, she is running additional tests. Thyroid, parasites, occult blood, another Lyme test (my daughter had a tick bite in March, tested negative but doctor still treated), and genetic for celiac. She also ran the TTG again. Initially her TTG was 47. After 5 weeks...

That makes sense. Her levels were obtained through biopsy analysis. So yeah, since her damage was patchy, maybe the levels can be too?

My daughger's biopsy had some inflammation and one sample of villi that was shortened, she also had a positive TTG blood test and clinical symptoms, but the damage was not severe enough for the GI to give her a celiac disease diagnosis. Just a little background there. We are getting a second opinion. My question is about the disaccharidase levels. Her...

Yes, doctor said to go gluten-free, but will NOT diagnose her with celiac disease. She says she doesn't have it now. Her doctor said to go gluten-free and see if her symtpoms resolve themselves. She will not give her a celiac disease diasnosis at this point. Not based on the blood work or the biopsy. That is why I'm looking for a second opinion. I DO think...

We have a second opinion appointment in 2 weeks. We've been gluten-free since the biopsy and she still has constant stomach pain but some of her other symptoms have lessened (or totally gone away). Her doctor said it could be early celiac before it caused more damage and said to go gluten-free but like I've heard on here before, you aren't a little bit...

I started a new thread on this since my old one went down a rabbit hole. My 4 year old tested positive with a TTG test and result was 47 on a range of <20 normal. She has clinical symptoms such as constant stomach pain, constipation, anger and frustration and eczema like rash. Her doctor says this pathology report doesn't support a full celiac diagnosis...

If I missed a sticky on this, I apologize. I had a few questions about specific items in terms of replacement. 1) Cast iron - I saw several threads but I'm just wondering if I should just repalce or try and clean. 2) Le Cruset Enameled cooking pot - the enamel isn't worn off but the bottom is black and I haven't been able to get it clean. 3) Food processor...

No worries on the derail. I just have to go back and read all these links now! Every little bit of info helps...

While her stomach pain hasn't subsided, she seems to have an increase in thirst at times. And she's barely eating. Are these possibly detox symptoms? I'm wondering if I should get her sugar and thyroid tested in case it is something else causing the increased TTG.

No worries!

Thank you. I only have the one daughter suspected of celiac disease. She is the one with the eczema and pain, so no son. I already called to make another appointment with another GI doctor. I'm praying I can get her in quickly. My FIL is also a pediatric infectious disease specialist so I'm going to see if he can show the pathology report to one of...

This is for my 4 year old just to clear it up. IEL's are the lymphocytes I believe. She said there was no increase in those but there was inflammation and damage to the villi in the duodenum. And yes, when I pressed her to characterize the marsh scale, she would not. She said this may be celiac disease early on. She suggested we contact a dietician and...