janeycar

Hello. I'm a little frustrated and confused and could use some input. I am a 26 yo female. In high school, I went through some stress and depression which I believe triggered my Hashimoto's. It wasn't until 2009 when my goiter was discovered and a few years after that I was put on Levothyroxine. My levels have been under control since, but I still yo yo and don't feel well. I have had two miscarriages and chemical pregnancy and one successful pregnancy. I had my gallbladder removed a year ago (gallbladder attacks started while pregnant and had it removed 11 post partum).

 

A few months ago, my depression and anxiety sky rocketed. I've been bloated, bowels are wierd (hard in the morning, soft in evening) hair is falling out despite thyroid being under control, multiple ear infections, lower back pain (been seeing a chiropractor), extreme brain fog (and I'm getting plenty of sleep), my periods have been wacky (returned about five months ago, I'm breastfeeding), gas has been taken to a whole new level although i've always been gassy, my hips have hurt since pregnancy (thought it would go away but hasnt), my vitamin d was tested and it was 27 (considered normal, but on the low end),

 

In the last few years I've had swollen gums, terrible sinuses, headaches (related to sinuses, who knows), am constantly tired (basically my whole life on that one), I occasionally get dizzy and light headed, I get hives at least once a day on my chest and face and my hands and arms have been getting weird bumps on them after sun exposure usually, I also have a "butterfly" rash on my face (my endo addressed this after my daugther was born and it was determined I have "indeterminate lupus" which means I might have it but not enough signs or proof to diagnose me with it, I just followed up with that again in the last few months).

 

SO, these are my test results from this week with only two tests of the celiac panel.

 

TRANSGLUTAMINASE IGA ANTIBODY <7.0 U/mL 0.4 TRANSGLUTAMINASE IGG ANTIBODY <7.0 U/mL

<0.6

     

 

 

My doctor said they are normal. I asked if I could get the other three tests done in a celiac panel and she wants to refer me to a GI. I feel like I'm being brushed off... I've been finding conflicting research on what these mean or no research at all so here I am. Could these results be scewed because I have at least one other autoimmune disorder? I should add my thyroid antibodies were over 6,000 a couple years ago when 60 or below is normal. Could that effect the results?

 

Should I move on and just feel like crap or pursue this because it looks like it could be celiac? I have had two people in the last year tell me I show signs of celiac and I brushed them off thinking no way, but recently I really feel like it could be a possibility.

 

Thank you so much for your time!

 

Ashley

Wow! A lot of the same symptoms that I had and I know how frustrating that is. By all means go to a GI that is experienced with Celiac's and knows what to look for. I saw many doctors and spent a small fortune going to different doctors that would just brush me off. After 9 years I finally feel like I am under control. The depression is mostly gone. I had hives too and my allergist put it all together and sent my blood to the Mayo clinic and the butterfly rash and hives were diagnosed as "autoimmune urticaria" which proved it was an auto-immune reaction. Please check that the GI you go to knows what to look for. I had an endoscopy a few years ago (before I had even heard of Celiac's; I just felt awful) and he told me there was nothing wrong. So frustrating....

You sound so much like I did a few years ago with many of the same symptoms. I tried many prescription acid inhibitors and was basically told by a doctor that it was all in my head. After I stopped on my own I felt a little better but this was before Celiac diagnosis.  Are you aware that there is lactose and gluten in many drugs? Lots of times the pharmacists are not helpful and I wonder if the spokespeople at the 800 numbers actually know whats in the medications. There is a website: www.glutenfreedrugs.com that I have found helpful. It lists the drugs by manufacturer and if there is gluten, lactose, corn, etc. in the pills. I wish I had known about this years ago and before I was paying a lot of money to have my drugs compounded, which is another option.

Good luck!