Jenny0409

So I'm a celiac, diagnosed 4 months ago. So after a rough start to the gluten free journey I have been steadily and completely gluten free for one month. I feel amazing and I've noticed major, positive changes in my physical and emotional well being in this short month. It has honestly been a game changer. Then it happened. Yesterday, I was glutened. Against...

That's an excellent way to view these circumstance and also allows me to fuel my inner control freak! HAHAHA I like it! Thanks for that!

The scale for my TTG IgA test was 0-3 negative, 4-10 weak positive, and above 10 positive. I was a 16. Guess that is pretty positive lol The denial is something I didn't expect. I know it's stupid to feel like maybe I don't have it when all signs point to a big fat yes. I know intellectually that I have to stay Gluten free and I'm doing very well on the gluten...

This post in itself made me feel a bit better. I felt really silly for feeling like I needed to grieve this. I feel like I'm still slightly in denile. I spend on average an hour a day trying to find an explanation to why my blood tests could be wrong in showing that I'm likely a Celiac. (Declining the endoscopy for now due to financials. Docs are pretty sure...

I think so too. However, my only concern was if the antibodies from having had Graves could still be floating around causing a false positive. But my positive TTG test was not a weak positive it was a very strong positive so it's likely that it is Celiac I suppose.

So recently I had a really high positive on the TTG IGA leading my doctor to believe I have Celiac. For a host of reasons, for the time being, I'm not going through with the endoscopy. I have been completely gluten free from day I got my results. I have no intention of going back on gluten. I had a previous diagnosis of Graves Disease(Hyperthyroidism) last...

This kind of pertains to the thread: What do you all normally order at Starbucks? Are any of the drinks completely gluten free? I've been ordering tea but mama needs some coffee! Still new to all of this....

Oh I forgot to mention, I did a little research and read something interesting about autoimmunity and urticarial. The photos I saw look 100% like what I get. I wonder if it could be a physical manifestation of the gluten issue.

Thank you for the suggestion. I looked into the condition and images of the welts/hives. I'm honestly thinking that's not it. They look nothing like what I get. I should probably take some photos to show and discuss them with my physician. They only come up one at a time and it's not often at all. They almost always large and go away within 20 or so minutes...

So I get these random hives or welts on my skin. They just appear out of nowhere. I will feel an itch on my leg, wrist or arm and all of a sudden there is a raised spot. Sometimes it's small like quarter or silver dollar size. Other times the hive or welt will be large like the size of a can of soda. These usually subside within 20 or 30 minutes. The don...

Thank you and you aren't intruding. I am actually declining the endoscopy for now. It's very expensive even with my insurance. It seems like it only serves as a confirmation and will tell me how extensive the damage, if any, correct? I'm not sure I want to know how much damage there is just yet. I was able to be given the diagnosis without that procedure...

Oh ok, so he is likely correct to assume I could be Celiac. I'm very hesitant to go forward with a biopsy. I've been through a lot medically this past year. I won't go into detail but it's been difficult. I don't know if I could handle going through that if it isn't 100% necessary. Other than being the most definitive diagnostic tool for the disease are there...

A little background: I'm 29 and had my thyroid removed last fall due to advanced Graves Disease (Hyperthyroid). My thyroid was so big it was choking me. Anyway, shortly after surgery we realized my calcium wasn't regulating itself and I've since been on 3600 mg in pill form per day and on 500 mg of Magnesium per day. I have consistent muscle cramps and spasm...