cherie012

After discovering my sons issues, I found ALOT of supporting info re celiac and me.. I made an appt with my family dr in 8 days~ do I HAVE to stay on gluten until then? if so, how much is the minimum? I have concluded nearly 95% that wheat IS causing my horrible hives, that includes my face/eyes/lips and tongue swelling. I was gluten-free for about a week...

Well, it took a little longer than last time to clear up, but he FINALLY did. So, I am certain we will steer clear of all gluten from now on, it is just TOO much on his little body. Thanks to all and the wonderful info!!! Just a quick question on gluten-free cake~ can you make it, and freeze it? I mean, so that he can have a little bit at other parties...

My son was breastfed from day one until 14 months. He was getting whatever passed from me to him~ included on that diet was dairy, soy, and wheat. When I eliminated it ALL from my diet, he got markedly better and gained. When I added it back ( the wheat, since the dr's figured it was only dairy/soy getting through) he stopped gaining. He STILL reacts to...

My Son has had "leaky gut" Since birth and diagnosed at 2 months old~ it was supposed to heal over at 4 months, then 6 months, then one year, now at 2~ who knows. He's never been hospitalized, but does not grow as quickly as he should. As said before, his GI said that protiens that generally stay inside the gut get through the barrier, causing the food intolerances...

Thanks so much for the info~ it helps. I think I was beginning to panic that his "recovery" after being gluten-free was a fluke~ even though he's never been so normal in his life... I was afraid the dreaded medication topic would come back around... I will give it some more time, and strictly gluten-free from now on... As for the reasons why he...

On Saturday~ his birthday, we were snowed out of our home. He had a small ( baby small) slice of his birthday cake, about half of a roll, and some breaded shrimp.. Monday came and he got a small snitch of said B~day cake ( just a bite before I caught him~ then it went in the trash).... He was feeling much better before this..... He's sooooooo miserable...

My little man seems SO miserable. He's got his GI symptoms, the raw rash on his bottom, belly aches ( didn't know he hurt before, but now I do! ) Going to bed really early, not sleeping well, drinking TONS ( well, with diarrhea like he as it's no wonder...) Is it normal to react like this~ strongly it seems and for a good bit of time, over such a...

Hey Christine!! I found you! We can be overwhelmed together. I promise, when I started this journey just a short month ago, i was in tears at the thought. It was "anythi ng but celiac, please" now, I am not so upset. it is OK. it is managable, in our control. That is good, right? It is overwhelming. Especially when others say "but a little bit won...

Duh. Once again, you guys are correct. I rechecked the box, it states "wheat free" I equated it to "gluten free" Just shows you how lost I can be with regards to diet~ I equated "wheat free" with "gluten free" in my mind, and purchased them on my first gluten-free run. It was a couple of days later before I realized they still had other offenders in them...

Really? A growth spurt will be AWESOME! We'll be happy to go shopping for that~ we've been having to buy smaller sizes!!!! I would be SO happy to have him growing, not at a standstill or loss, man, that would be a celebration!

Mason is already dairy and soy sensitive, with soy being worse than dairy. What I mean by as much as I can is~ right now, I am still learning. I am having some troubles remembering all of the info, and seemingly OK things ~ like a box of cereal bars that SAY "GLUTEN FREE" on them, in fact, is a no no, because it has barley, oats, and another grain in there...

I totally understand, and didn't want to sound harsh with my reply~ I mean, IMO and experience, the info is where the masses are, from people who have been there done that, with regards to this stuff. I mean, my brother ( who has graves) asked his dr about this, since my son tested positive for the genes, and his answer was "you're too big to have it, no...

I am not here asking for a dr's advice~ I am asking for advice from others who have been there done that and could probably write a book. I am a RN and have a little knowledge of where to seek out "real" medical advice both live and on the web, and have access to my son's dr's and thier opinions,and frankly I am at the end of my rope with them, seeing how...

Well, it was nearly 2 weeks since being gluten free. And, we got snowed in with the inlaws, so, his birthday cake ended up being regular. He had a small bit of cake, ( icing has gluten too, not the gluten-free stuff) and some breading on his shrimp, and 3 bites of a roll.... And..... Like usual, 3-5 hours after ingesting it, the nasty return of his diarrhea...

Karen, I am a RN too, but not GI, LOL. I am very new to this realm, starting with the birth of my son... I know they don't have all of the answers, but sometimes feel strange not taking thier advise, when generally it is sound. But, he is having positive results, no matter what the tests may or maynot say. It could be coincidental, but I doubt it. I will...