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cherie012

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cherie012

  1. cherie012
    After discovering my sons issues, I found ALOT of supporting info re celiac and me.. I made an appt with my family dr in 8 days~ do I HAVE to stay on gluten until then? if so, how much is the minimum? I have concluded nearly 95% that wheat IS causing my horrible hives, that includes my face/eyes/lips and tongue swelling. I was gluten-free for about a week...
  2. cherie012
    Well, it took a little longer than last time to clear up, but he FINALLY did. So, I am certain we will steer clear of all gluten from now on, it is just TOO much on his little body. Thanks to all and the wonderful info!!! Just a quick question on gluten-free cake~ can you make it, and freeze it? I mean, so that he can have a little bit at other parties...
  3. cherie012
    My son was breastfed from day one until 14 months. He was getting whatever passed from me to him~ included on that diet was dairy, soy, and wheat. When I eliminated it ALL from my diet, he got markedly better and gained. When I added it back ( the wheat, since the dr's figured it was only dairy/soy getting through) he stopped gaining. He STILL reacts to...
  4. cherie012
    My Son has had "leaky gut" Since birth and diagnosed at 2 months old~ it was supposed to heal over at 4 months, then 6 months, then one year, now at 2~ who knows. He's never been hospitalized, but does not grow as quickly as he should. As said before, his GI said that protiens that generally stay inside the gut get through the barrier, causing the food intolerances...
  5. cherie012
    Thanks so much for the info~ it helps. I think I was beginning to panic that his "recovery" after being gluten-free was a fluke~ even though he's never been so normal in his life... I was afraid the dreaded medication topic would come back around... I will give it some more time, and strictly gluten-free from now on... As for the reasons why he...
  6. cherie012
    On Saturday~ his birthday, we were snowed out of our home. He had a small ( baby small) slice of his birthday cake, about half of a roll, and some breaded shrimp.. Monday came and he got a small snitch of said B~day cake ( just a bite before I caught him~ then it went in the trash).... He was feeling much better before this..... He's sooooooo miserable...
  7. cherie012
    My little man seems SO miserable. He's got his GI symptoms, the raw rash on his bottom, belly aches ( didn't know he hurt before, but now I do! ) Going to bed really early, not sleeping well, drinking TONS ( well, with diarrhea like he as it's no wonder...) Is it normal to react like this~ strongly it seems and for a good bit of time, over such a...
  8. cherie012
    Hey Christine!! I found you! We can be overwhelmed together. I promise, when I started this journey just a short month ago, i was in tears at the thought. It was "anythi ng but celiac, please" now, I am not so upset. it is OK. it is managable, in our control. That is good, right? It is overwhelming. Especially when others say "but a little bit won...
  9. cherie012
    Duh. Once again, you guys are correct. I rechecked the box, it states "wheat free" I equated it to "gluten free" Just shows you how lost I can be with regards to diet~ I equated "wheat free" with "gluten free" in my mind, and purchased them on my first gluten-free run. It was a couple of days later before I realized they still had other offenders in them...
  10. cherie012
    Really? A growth spurt will be AWESOME! We'll be happy to go shopping for that~ we've been having to buy smaller sizes!!!! I would be SO happy to have him growing, not at a standstill or loss, man, that would be a celebration!
  11. cherie012
    Mason is already dairy and soy sensitive, with soy being worse than dairy. What I mean by as much as I can is~ right now, I am still learning. I am having some troubles remembering all of the info, and seemingly OK things ~ like a box of cereal bars that SAY "GLUTEN FREE" on them, in fact, is a no no, because it has barley, oats, and another grain in there...
  12. cherie012
    I totally understand, and didn't want to sound harsh with my reply~ I mean, IMO and experience, the info is where the masses are, from people who have been there done that, with regards to this stuff. I mean, my brother ( who has graves) asked his dr about this, since my son tested positive for the genes, and his answer was "you're too big to have it, no...
  13. cherie012
    I am not here asking for a dr's advice~ I am asking for advice from others who have been there done that and could probably write a book. I am a RN and have a little knowledge of where to seek out "real" medical advice both live and on the web, and have access to my son's dr's and thier opinions,and frankly I am at the end of my rope with them, seeing how...
  14. cherie012
    Well, it was nearly 2 weeks since being gluten free. And, we got snowed in with the inlaws, so, his birthday cake ended up being regular. He had a small bit of cake, ( icing has gluten too, not the gluten-free stuff) and some breading on his shrimp, and 3 bites of a roll.... And..... Like usual, 3-5 hours after ingesting it, the nasty return of his diarrhea...
  15. cherie012
    Karen, I am a RN too, but not GI, LOL. I am very new to this realm, starting with the birth of my son... I know they don't have all of the answers, but sometimes feel strange not taking thier advise, when generally it is sound. But, he is having positive results, no matter what the tests may or maynot say. It could be coincidental, but I doubt it. I will...
  16. cherie012
    It was odd to us, too. He wanted to put him on steroids, and a ulcerative colitis med that has nasty side effects~ some are brain injury in children under 2..... Blood issues, etc. It had to be taken with folic acid... He wanted to see if that helped ebfore doing diet changes.. We tend to do lots of japanese style foods in this house, so eliminating...
  17. cherie012
    I had put him on the diet myself last week~ it wasn't hard because he's small, and the main thing I had to do was replace his snack foods~ generally dry cherios or puffed wheat, or crackers with other things. we beefed up his fresh fruit and veggie intake as well instead of the other snacks he was using, and put rice cereals in place of the wheat, rice crackers...
  18. cherie012
    No, the ones I have are just the antibodies, not the Aga,Ema etc.... It is just an immunoglobins panel.....
  19. cherie012
    I recieved my son's blood work back today in hand ( not just a phone conversation to tell me...) The only ones I see of importance are the immunoglobins, all read OK, but none are what I see talked about ( the anti globulins..) IGG was "normal" at 744mg/dl IGA was "normal" at 105mg/dl IGM was "normal" at 56mg/dl He did have anemia/low iron and...
  20. cherie012
    Ya know, I was SO happy, I called my family ( poor people LOL) DH, and wrote the ped GI... I am ESTATIC. I mean, that is a BIG first around here. sounds SO silly, but man! We can do this. It seems to be helping... Thank you all SOOOOO much for tolerating my insessant questioning, LOL. You all helped seal the deal for me to start gluten-free first......
  21. cherie012
    OK. I know the whole BM topic is kind of gross, but..you all will totally understand, I hope..... He had his first EVER in his life NORMAL BM!!!!! OMG OMG I am SOOOOOOOOOO happy!!!!! Oh happy day!!!! I think this is it! This is the key! No meds! I told the DR we already began a food trial, and our results so far..... Oh I hope this continues! Maybe he'll...
  22. cherie012
    I need to know what is a really good chocolate cake mix ( preferrably, I stink at made from scratch) for my son'd 2 year birthday. And, is Icing OK to use? if so, what kind? Where can I get it, and quickly, LOL... Thanks!
  23. cherie012
    I was afraid it was a fluke, LOL. But, today so far is the same, still no explosive Bm's, and we generally have 3 by this time already. I am SO hopeful. I will see what happens today, then call the ped GI and let him know I've already started the trial and seen results, so we will be passing on the meds... I hope this sticks!!!! It will be SO nice to have...
  24. cherie012
    I started Mason last monday. He had a couple of slips on tuesday and wednesday~ both with dry cereals, and in small amounts. we didn't see any changes, but, it has been 4 days now totally gluten free. I substituted organic rice cereals for his favorite cherios and wheat puffs, and he now has gladly accepted them to prevent the slips again. Well...
  25. cherie012
    I just called the pharmacy to get the full medlist he prescribed, so I could hopefully understand it more.. But, I don't LOL. Prevacid. No biggie. He was on this from 11 days old on up til 15 months. He is still refluxing, so I can understand this~ Prednisone~ rationale is to decrease the inflamation throughout the gut. But, I hate the side effects...
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