SFmaybeCeliac
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I appreciate your concern! The reason I am hesitant to get a second endoscopy is that I don't have any real reason to expect it to be positive. It was negative before, not much has changed, and it costs much more at UCSF than anywhere else almost, but I'm just not sure where else I should trust. So it seems dumb to spend so much money in it, if...
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Thanks so much for your detailed reply. Unfortunately I missed the email about it or I would have responded sooner. I had 10-12 biopsies taken. This is the report summary and symptoms: FINAL PATHOLOGIC DIAGNOSIS SMALL INTESTINE, DUODENUM, BIOPSY: - NO SIGNIFICANT PATHOLOGIC ABNORMALITY. STOMACH, BIOPSY: - NO SIGNIFICANT PATHOLOGIC ABNORMALITY...
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Hmm. These are my results: Tissue Transglutaminase Antibody, IgA: 77.6 (standard: <20.0 CU) Gliadin Ab IgA, Deamidated: 15.5 (standard: <20.0 CU) Gliadin Ab IgG, Deamidated: 57.5 (standard: <20.0 CU) IgM, serum: 80 (standard: 39 - 333 mg/dL) IgG, serum: 867 (standard: 672 - 1760 mg/dL) IgA, serum: 169 (standard...
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Thanks, that's helpful as a bare minimum Though I I'm hoping to find someone who not only is not bad, but someone who is explicitly recommended for Celiac diagnoses, given that I've already had one potential false negative (from a highly regarded doctor). Perhaps there is some directory for this too?
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I'm trying to find a decent place to get an endoscopy for celiac -- I had a highly recommended doctor at Kaiser, but am now on Anthem Blue Cross, and an endoscopy is very expensive at UCSF where my GI doctor recommended it. It can be 10,000$ without insurance, would still be $2000 with my great no-deductible EPO plan! Other places seem to be much cheaper...