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MelliF

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Everything posted by MelliF

  1. MelliF
    Hi krosmon, my diet right now excludes most all added ingredients. Prior to my gluten challenge I set a baseline for a few weeks with foods that were safe, well-tested, and highly tolerable for me. This let me track symptoms to focus on what is "normal" for me. I mostly eat the same foods all the time anyway due to my FODMAP and Specific Carbohydrate Diet...
  2. MelliF
    Hi SLLRunner, I'm happy with the results, not worried about a false negative. I was surprised at how I reacted, I've sometimes wondered if it was "in my head" all those years ago. But I tracked and graphed the symptoms, some rapidly went up at 3 days into the challenge. Happily I did the double-blind test, otherwise I'd still wonder if it was "in my head...
  3. MelliF
    Just got results - celiac antibodies were negative. As I expected For anyone wondering on the "should I" aspect of a gluten challenge -- I'm glad I did it. I know the answer and it was worth the 6 weeks of symptoms. Granted, my symptoms were terribly severe, but totally worth it for me to just KNOW. Also, I have no plans to eat gluten in the future...
  4. MelliF
    Noobette, sure did use gluten-free oats! I even had to test the oats alone before the test as they sometimes give me problems, probably due to fodmap. As an update, my symptoms became bad enough that we aborted the challenge. My colleague revealed I was eating the gluten! So I skipped the decoy sample to just get this over with. I'm not sure that my...
  5. MelliF
    Following up on my thoughts posted here. I decided to do the gluten challenge, using vital wheat gluten (VWG) to avoid any FODMAP related symptoms I get of bloating, gas, and pain. I'll be showing my science-nerd side here I set up as best I could a blinded challenge with a placebo, to see if I was having psychosomatic symptoms or real symptoms. I...
  6. MelliF
    Yes! I have started other supplements and I'll look into what you said about taking them together as I'm not purposely doing that. Im happy to supplement, but would rather find the hole and stop the leak, so to speak. But in the meantime, doing what I can!
  7. MelliF
    Cyclinglady - I'm a immunologist so I know just enough to wonder, but not enough to help myself! I'm PubMed'ing, designing 'scientific' experiment to test foods, and speculating way too much in my own head. I need to 'talk out loud' with others, hence my post. So all other speculations welcome! I've also learned that our hundreds of "n=1" individual stories...
  8. MelliF
    Thanks Wildflower, By what measure were you thinking to re-evaluate after three months? Improved Vitamin D? Being more diligent is an approach I've been thinking about but I wasn't sure what to measure success by. They are increasing my Vitamin D prescription so I'm not sure that will work. I'm symptom free right now. But like you say, I could be just...
  9. MelliF
    First off I want to say thanks to everyone who contributes to these forums. I've been reading like crazy the past few weeks and learned so much! But now I'm ready with questions. I've typed and erased this email over and over, trying to get at what my question really is, hope it's clear. Briefly: 40 yo female with gut symptoms for 20 years. Mom, grandpa...
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