caretothepeople

Hi Ellie! Maybe the Celiac Disease Foundation can point you in the direction of a doctor in NYC. Take a look at their site - they have a doctor finder tool. Many of the major medical centers here have centers that specialized in Celiac Disease, so those could be a potential resource. Also, I think using ZocDoc you can enter what insurance you have and...

A skin biopsy is used to confirm a diagnosis of DH so that may be something you want to ask your doctor about getting in addition to asking what other testing you might needs. Other questions to ask about DH (these came from gluten (dot) org) Questions to ask your doctor: Should I take medication for this disease? How long will I need to take...

Yes it sounds like you may need further testing to rule out other conditions. Maybe seeking a second opinion from a endocrinologist and/ or rheumatologist would be a place to start.

This is a personal choice and everyone will have different levels of comfort depending on personal preferences and their circumstances -- what's available, where they live, the details of their condition. Gluten Dude is a blogger who has written a lot about the topic of dining out with Celiac: Open Original Shared Link Calling ahead to see if they...

Getting a diagnosis like celiac an be overwhelming because it's so complex and there's a lot to learn. If you're unhappy with your doctor, switching to a new one and/or getting a second opinion are options. It's really important to find someone you feel comfortable with who listens to your concerns. That being said, as you're preparing for your next appointment...

It's understandable why you're feeling scared. It sounds like you've been through a lot with your health, and kudos to you for staying proactive and trying to seek answers. It can be hard and overwhelming at times, but getting an accurate diagnosis (whether celiac or not) can help bring relief. If you pursue testing it might be helpful to take a look...