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MelissaNZ

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by MelissaNZ

  1. MelissaNZ
    Thanks for that. Will get her tested for deficiencies. I did take her to a naturopath and get her on a bunch of vitamins, but she never was tested via bloods, so will get on to that, thanks
  2. MelissaNZ
    Thanks for your reply. I will get her retested. She hasn't had any gluten for a year and is very good at not eating it, but had some cake that night. It's so hard because the Dr who did the biopsy said there wasn't any damage so she can't be classed as Coeliacs. She had ten samples taken, but yes, like you say the intestines are huge.
  3. MelissaNZ
    Thank you for your informative reply. Yes I think you are right in that she is still getting dome cross contamination exposure through chopping boards, condiments etc. I will get her bloods redone to see if her levels have dropped and do a gluten challenge again. We all are on a whole foods diet, buy not all Gluten-Free. I find extended family...
  4. MelissaNZ
    Hi wondering if someone could help. my daughter has mildly raised TTG levels and the gliadine levels, she has one Coeliacs gene, but her biopsy came back negative. We have kept her off gluten (and low dairy) for nearly a year to see if her symptoms improved. They haven't. But I don't know if they are related to gluten specifically. Just wondering if...
  5. MelissaNZ
    Thanks. Am going to get a copy of her biopsy results on Monday, and go to the GP and discuss any further testing required.
  6. MelissaNZ
    So my daughter's biopsy came back negative. Which is great. However, I'm now wondering does that mean something else is wrong causing her to have elevated markers. I know that biopsy's aren't always correct due to them not being able to test all the intestine (they took 6 samples), however, I guess I have to go with the results as they are presented, but...
  7. MelissaNZ
    Hi just got my daughters gene test results back from the nurse but not sure what it means. She said 1 part of the HLA tested positive (I'm not sure which part - will request a copy of the results tomorrow). Her other readings are below. Dr is going to refer to pediatrics to see if she should get a biopsy. So does this pretty much mean she has it? Thanks for...
  8. MelissaNZ
    Oh and look into GAPs diet. So awesome for gut healing. You can get the book and do it yourself or find a gaps practitioner
  9. MelissaNZ
    Wow you've been through a lot. So great you've found a reason though. A woman I know was 45 before she was diagnosed so yes it is possible. Such a freaky disease
  10. MelissaNZ
    Hi my daughter had had two blood tests showing positive results and my Dr referred her to get a biopsy. However the pediatrics now want her to get a gene test. Is this normal procedure? It seemed her bloods were pretty conclusive that she had it. Thoughts much appreciated.
  11. MelissaNZ
    She had blood tests and are waiting on a biopsy. These were her test results - so I'm guessing they are anti-body tests?: Gliadin peptide - 17.2 tTG IgA AB - 15.4 IGA - 0.7 Endomysial antidoies - positive.
  12. MelissaNZ
    My daughter has just been diagnosed and her symptoms are relatively minor, in that she doesn’t get major stomach pains etc (just sometimes feels a bit yucky and the odd throw up once very few months), but her main symptoms are she can get constipated and also has low weight and height gain. So how vigilent do we have to be? Like I know we have t...
  13. MelissaNZ
    Hiya, my daughter has just had a month on gluten and had her 2nd test results, so would love to get your advice on whether you think she actually has celiacs. Her doctor said she is convinced she does, so we have now been referred to a paediatrician to get a biopsy. So if any of you clever people wouldn't mind having a look at her results and saying what...
  14. MelissaNZ
    Hi, have seen some stuff about gene testing for celiacs online - is this something worth doing, and can anyone suggest a reputable company to go through (and takes samples from overseas - we're in New Zealand). thanks, Melissa
  15. MelissaNZ
    Thanks for all your replies.
  16. MelissaNZ
    wow, thanks for all that info cyclinglady. The more I read, the more I'm realising it is such a complicated disease, with no rhyme or reason half the time. Ta for suggestion of full celiac panel - if you don't mind, could you explain exactly what that is? I just don't want to be fobbed off by the doctors and want to be informed. When she got tested...
  17. MelissaNZ
    Hi, thanks for replying. That's interesting with your boy, that he is fine most days, and then has random symptoms ... .was he on gluten every day? She seems fine today, and has been eating bread, so not sure what will happen tonight. I guess i'm trying to figure out if she does really have it, instead of having to wait a whole month for the 2nd test...
  18. MelissaNZ
    Hiya, we are in the process of having my 7 year old daughter tested for celiacs. Her blood tests came back with one of her markers elevated, so she is now eating gluten every day for a month and then she will be getting another blood test to see if they have gone up - fingers crossed she doesn't have it. Her symptoms are.... constipation, very very...
  19. MelissaNZ
    Hiya, we are in the process of having my 7 year old daughter tested for celiacs. Her blood tests came back with one of her markers elevated, so she is now eating gluten every day for a month and then she will be getting another blood test to see if they have gone up - fingers crossed she doesn't have it. Her symptoms are.... constipation, very very...
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