swatson
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About Me
I was one of the first in Bergen County NJ to be diagnosed with Celiac Sprue.
It was back in 1996. A time when no one knew anything about it, even Dr's and nutritionists. I found my self educating them for years. Baking my own bread etc... it was tough. It took 1 1/2 yrs to diagnose. I lost 75 pounds and my family thought I was dying of cancer, so did I. It was scary. I had no strength what so ever. I slept constantly. Once diagnosed it took 2-3 years to get the diet down. Especially since no one had ever heard of it. It has been 17 years since and I have gained too much weight back 
. And still have break throughs, especially when dining out. You really can't trust any one or any place. They try but don't really understand. Safest bet is to eat your own food and read labels carefully. Be Careful of "Gluten Free" restaurants. They mostly cater to those trying to diet vs those os us who really suffer
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Horrible Pressure Headaches After Eating
swatson replied to lemonade's topic in Coping with Celiac Disease
I get the heart pounding feeling when I eat dairy alot. I used to get that feeling at night in bed all the time but once I changed my diet it went away. I used to think I was losing it. I was always told that I was experiencing anxiety symptoms but it wasn't. It was gluten. I used to be able to feel it in my hands. -
Horrible Pressure Headaches After Eating
swatson replied to lemonade's topic in Coping with Celiac Disease
Yes I get pressure head aches too. It is almost like sinus pressure for me. I also get feverish about 1 hour after I eat anything. My forehead and neck get burning hot. I am seeing a derm about this next week. -
hi. After the intial first weeks of suffering following messing up I experience major muscle cramping and bone pain mostly in my ribs and spine. I was wondering if any of you experinece this.