Jump to content
  • Sign Up

moomoo5

Members
  • Content Count

    2
  • Joined

  • Last visited

Community Reputation

0 Neutral

About moomoo5

  • Rank
    Contributor

Recent Profile Visitors

The recent visitors block is disabled and is not being shown to other users.

  1. Is there anyone on here who has been diagnosed with Refractory 1 Celiac? I was just diagnosed. I have had celiac for 8 years, 2 years ago I had an autoimmune attack on my body and my healed celiac become worse than when I was first diagnosed. I made an appt with Dr. Fasano at MGCH and I tried the Fasano diet for 6 months, it did bring some inflammation down and heal some of the villi but not enough. Next he tried my on beudesonide for 4+ months and some of the villi began to unheal. He did a special test to see why this was happening and could see that my immune cells were going out of control and that I had refractory 1. I did a special gene bloodtest and am waiting for results to see if I can start Imuran. I would love to talk to connect with others who have had this diagnosis as it is so rare.
  2. I was just diagnosed yesterday with Refractory type 1, about to start imuran
×
×
  • Create New...