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chicago wendy

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  1. Yes Posterboy, I was diagnosed before anyone heard of celiac disease. And it was a flukey thing ... I  had been on a trip where I ate lots of bread and I developed severely swollen ankles and water retention all through my body. I was a senior in college at Boston University and amazingly, Lahey Clinic was able to diagnose me after two HORRIBLE endoscopies. Back then, people weren't sedated fully and it wasn't pleasant :). 

    Anyway, thank you so much for the info you sent along. I'm aware of the dangers of PPIs and can't wait to get off of them. My plan is for that to happen soon ... Now I have to find an integrative physician in the Chicago area who's good. Anyone know anybody good in the Chicago area?

  2. Thank you, Ennis and Estes, for your responses! Ennis, my first ulcer showed up three years ago in my dudodeum. Then the next endoscopy showed a different ulcer in the same area. Most recently (just a month ago), the ulcer showed up in my stomach. I don't know anything about my PH. How do I get it measured? I need to find a non-mainstream doctor ... As for aloe juice, I have used it when I was trying to get off of PPIs but when it didn't work, I stopped drinking it. Perhaps I should start again ... I've never known a doctor to talk about a correlation between celiac disease and ulcers. Have you?

    Estes, what's the AIP diet? 

    Thanks so much to both of you. I hope to learn from this forum. At end of May I'm having another endoscopy and if it shows remaining ulcer(s), I'm going to see an alternatively oriented doc.

    Have a great day!

  3. Hello everyone! I just stumbled on this website while searching for any possible correlations between celiac disease and ulcers. 

    I am 61 years old and was diagnosed with celiac disease 39 years ago! Thus, I've been on a strict gluten-free and dairy-free (as well as soy-free) diet all these years. After doing very well, I started developing repeated ulcers about three years ago and am still being treated for them. I have NO risk factors; i.e., don't have H Pylori (have been tested twice), don't use NSAIDs, don't smoke, don't drink and drink very little coffee - in fact none since my diagnosis three years ago! I was also tested for Zolinger Ellison, (sp?), a rare syndrome which causes increased gastric levels and that was negative as well.

    I was interested to read on some older posts on this website (around 2010) that others with celiac disease have also dealt with this problem and I'm wondering if the medical establishment has yet to recognize that there may in fact be a correlation between the two conditions.

    I'd love to hear from anyone who has thoughts on this. I'm also interested in treatment that doesn't involve PPIs. After three years of taking them and because they're powerful drugs with many potential side effects, I would love to cure my ulcers in a natural way. 

    Thanks very much!!

    Wendy Manto

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