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Nineflowers

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Everything posted by Nineflowers

  1. Nineflowers
    Thanks, ravenwoodglass. I know they 'only' took 4 biopsies so there is a chance they missed it, even if I have it - am also guessing because it's pan gastritis - no one bit of my stomach lining looks too different to any other, so it was probably random, where the dr chose the sites to biopsy. I won't give up on it if I feel at all better and might continue...
  2. Nineflowers
    Dietician nurse says the same as the doctor: come off the gluten for a month, see if you feel better and if you do,then continue gluten free or go back on if you want the diagnosis. Although as far as they're concerned, I'm gluten intolerant if I notice a difference and say I am. I said it will be harder to return to gluten, after I have stopped but they...
  3. Nineflowers
    Thanks, both. Janine, it does sound like we are on precisely the same journey and almost starting out at the same time. Nice to not feel so alone with this. It's a bit more daunting than I'd expected it to be. Not sure if the GP's dietician can do bloods tomorrow, or whether I'll have to book back in, in a few days or next week, for the...
  4. Nineflowers
    Thanks for that reassuring and useful reply. Am seeing the dietician person at my GP's practice tomorrow so have resumed the gluten for now and will see if she can sort out or do a blood test, tomorrow. Further reading tells me one type of gastritis is 'auto-immune', and whether gluten is the culprit or not, I suspect that's what I have. Looked...
  5. Nineflowers
    Thanks all. It's appreciated. Yes, I think the usual protocol was maybe disrupted by the fact I initially had the aggressive GP who just wanted me to go for an endoscopy, and flatly refused to do bloods or anything else. She seemed in a huge rush both time I saw her. She couldn't clearly communicate - I had to ask her to slow down and repeat...
  6. Nineflowers
    Hi Matt That's really confusing as I saw her earlier this evening and she told me to come off gluten for a month or so THEN go back for the blood test! I thought this was odd so made her clarify - and she repeated it. She also said something about the blood test being different to the biopsy - but am not sure how? Now am really confused...
  7. Nineflowers
    Hello - nice to find fellow Brits. This is literally going to be my first day starting to go gluten free. I'm waiting for biopsy results from my endoscopy this week but the more I read, the more convinced I am that gluten is worth dropping. I also have PCOS and apparently gluten is bad for that... No clue what I am doing with this and it all...
  8. Nineflowers
    Hi. I started feeling really unwell several months back. Permanently exhausted; brain fog; really bad acid reflux and sometimes heartburn/indigestion so bad it kept me awake at nights (after never having a problem like this in my life, and I'm in my mid 50s). To the point it stopped me working. Initially, I went to a rather unsympathetic new GP in my practice...
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