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Kelly0

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  1. 3 hours ago, Ccllcc46 said:

    My daughter was diagnosed with celiac disease 5 months ago after she had fallen off the growth chart. She is 7 years old. Anyone happen to know when we may start seeing celiac growth spurt? I'm worried because in the past 5 months she's grown 1/2 an inch and has only gained 1/2 lb. We are following up with her endocrinologist this week and I want to be prepared before we go in to see her. Thanks! 

    Both of my children (6 & 9) and myself were diagnosed around 6 months ago. With my husband on board we are a 100% gluten free household. After a summer vacation with another family I found that there are so many potential cross contaminations that can possibly occur when there is a shared kitchen. I feel so lucky in that we don't have to worry at home but understand there is a lot of work for the parent preparing food for a celiac child. If you haven't yet researched about ways to keep the celiac disease kitchen/food separate I would definitely get that in order.

     The kids were just retested and their TTG numbers after 6 months were cut in 1/2 for my 9yo who was most effected by celiac disease, and down by 75% for my 6yo. With this confirmation I feel that we're on the right track with our diet along with overall feeling 100% better. With that being said, my 9yo has always been on the low end of the growth charts, I too was hoping that he would really take off once we changed our diets. I feel that he has only begun to grow in the last month or so. He's up 1-1/2" and about 1 Lb. His GI doc was a not concerned at this point but reminded him to eat his meals and encouraged me to give him high calorie, high protein to his diet. 

    Best of luck!

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