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Carolina

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Everything posted by Carolina

  1. Carolina
    Thanks for responding, I appreciate the help. Yes, I agree there is benefit to her Crohn's with a gluten-free diet whether she is Celiac or not. One thing I have learned is that diet is an EXTREMELY sensitive topic amongst IBD sufferers and varies widely across patients. They get feisty when people suggest a gluten-free diet is the answer for all. She is...
  2. Carolina
    Hi all. My daughter was diagnosed Crohn's in October. Her initial GI that performed the Celiac testing/colonoscopy/MRE due to bloody diarrhea flare-ups thought her Celiac results were a false-positive due to the Crohn's. After the procedures he said things looked "unremarkable" but the biopsy did end up showing diffuse villous blunting. One thing that complicates...
  3. Carolina
    I thought I would come back and update one more time. We got a 2nd opinion from another Pediatric GI that is well-regarded. I also preferred a female because I think that will make my daughter feel more comfortable especially in the years ahead. The new Doctor 100% agrees with me on the Celiac diagnosis and said with numbers that high there is no way it is...
  4. Carolina
    I wanted to update since we had her appointment this morning. I am forever grateful to a local friend that has UC and spent a long time looking at her case and armed me with incredible information. I shocked him at every turn and it felt so good! We started the appointment with it's most likely Crohn's and ended with 75/25 to 60/40 it is UC and Celiac. I...
  5. Carolina
    Haha, I’m on it. Had myself tested last week and all were negative. Understood, we are a family of Type A overachievers and none of us are good at relaxing. Work in progress....
  6. Carolina
    Thank you, allow me to comfort you now. I have had AI issues since college. Reynaud's and debilitating joint pains along with chronic fatigue. I was always in a gray area, blood work trending towards Mixed Connective Tissue Disease. Signs of Lupus but not everything needed to diagnose with certainty. They initially tried to say Fibromyalgia which is the we...
  7. Carolina
    Thank you. Despite what he said initially, I do not plan to ignore the Celiac results. I am working on a 2nd opinion that I want for that reason and to also get another opinion on Crohn's treatment plan. Her procedures were Friday, she had D on Saturday whether it be from the flare-up or procedure and has been fine since. I know others require liquid diets...
  8. Carolina
    I just got an email that some test results were updated. I am devastated. Tough to understand it all, but this was the comments at the end... COMMENT: The upper gastrointestinal tract involvement (duodenal) and sparing ofthe hepatic flexure/proximal transverse colon segments are suggestive of Crohn'sdisease. Clinical and endoscopic correlation...
  9. Carolina
    Thank you all for taking the time to respond. I really don't see how it could be a false positive and I plan to proceed with cutting out gluten regardless. I have great medical where I live and the Doctor is highly regarded. I know he specializes in Chron's/Colitis. I plan to get a second opinion. I am really hoping he doesn't come back with Chron's, I have...
  10. Carolina
    Correct, I have not heard the official biopsy results of endoscopy and colonoscopy. He said based on what he saw on endo he doesn't suspect celiac and based on what he saw on colonoscopy it is clear it is IBD in some form. I have read I should ask how many biopsies were taken to confirm there was enough taken to not be missed. I thought anemia too, but...
  11. Carolina
    Hello, I would appreciate some guidance on my daughter's testing results so that I may be armed with the best questions to ask at her follow-up appointment. She is 10yo (tall 75% and very, very thin), consistent growth curve since birth. Had constipation issues as a toddler, but nothing overly noteworthy. Treated with miralax. She occasionally...
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