jfhinoh

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jfhinoh last won the day on January 4

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  1. The pharmacist was able to contact both manufacturers and determine both medicines are gluten free.
  2. I just returned from the doctor and pharmacy and I am so frustrated. My doctor wrote 2 prescriptions. When I went to pick them up from the pharmacy, I discovered they both list sodium starch glycolate in the inactive ingredient list. The options from the pharmacist were to make calls to the manufacturers, or she offered to transfer my prescriptions to another pharmacy (no guarantee of gluten free status there either). I have been sick for almost a week and I just want some medicine to feel better without potentially making me feel worse. Any suggestions on how to make filling prescriptions an easier process would be appreciated.
  3. A lot of the olive oil sold in the United States is diluted with less expensive oils or other ingredients. It may not actually be a reaction to olive oil, but to one of the other questionable ingredients. 60 Minutes did a story on this awhile ago: https://www.cbsnews.com/news/60-minutes-overtime-how-to-buy-olive-oil/
  4. jfhinoh

    Starting AIP

    I did AIP a year ago for almost 4 months (starting reintroductions after 4 weeks). It was overwhelming at first. I spent a lot of time reading websites and blogs about AIP for knowledge and support. I had to really plan ahead because it’s really hard to find meals and snacks on the go. The first week I was really hungry-I ended up spending a couple hours at Whole Foods reading labels and spent way too much money on specialty ingredients and snacks just for variety! I cooked in bulk on my days off and carried a bag of AIP friendly snacks and meals with me when on the go. Planning got get easier as time went on but I did miss eating out and having to plan and prepare every meal every day without spontaneity. It wasn’t easy but it was worth it for me to have a clearer understanding of how various foods made me feel. This is how I discovered my gluten sensitivity. I am in a much better place health wise than this time last year. I’ve included some links to things that helped me. This website was a great starting point for me: http://www.phoenixhelix.com/ these bars were a lifesaver: https://epicbar.com/bar-detail/1 I received information about a support group that was starting this week for people trying the AIP diet again. (I didn’t sign up.) I don’t know if it’s still open. https://www.thepaleomom.com/start-here/the-autoimmune-protocol/ I hope you get the answers you are looking for. Keep us updated.
  5. Yesterday I purchased a different brand of gluten free pizza. A few hours later, I felt like I do when I’ve eaten gluten. Several of the ingredients are things I don’t usually eat. Any suggestions of which ingredient might act similar to gluten would be appreciated. INGREDIENTS: CRUST: SMART FLOUR (TAPIOCA FLOUR, SORGHUM FLOUR, TEFF FLOUR, AMARANTH FLOUR), POTATO STARCH, MODIFIED TAPIOCA STARCH, SORGHUM FLOUR, WATER, OLIVE OIL, SUGAR, AGAVE, FLAX SEED, YEAST, SALT, XANTHAN GUM, BAKING POWDER (SODIUM ACID ‘ PYROPHOSPHATE, SODIUM BICARBONATE, CORNSTARCH, MONOCALCIUM PHOSPHATE), GUAR GUM, BAKING SODA, NON-GMO CANOLA OIL (EXPELLER PRESSED FROM NON-GENETICALLY MODIFIED SEED). CHEESE: WHOLE MILK MOZZARELLA CHEESE (PASTEURIZED MILK, CHEESE CULTURES, SALT, ENZYMES), PROVOLONE CHEESE (PASTEURIZED MILK, CHEESE CULTURES, SALT, ENZYMES, NATURAL SMOKE FLAVOR), POWDERED CELLULOSE (TO PREVENT CAKING). SAUCE: TOMATO PUREE (WATER, TOMATO PASTE), SUGAR, SALT, DEHYDRATED GARLIC, SPICES, XANTHAN GUM, DEHYDRATED ONION. UNCURED PEPPERONI: NO NITRITES OR NITRATES ADDED) PORK, SEA SALT. CONTAINS LESS THAN 2% OF THE FOLLOWING: NATURAL FLAVORING, TURBINADO SUGAR, PAPRIKA, NATURAL SMOKE FLAVOR, LACTIC ACID STARTER CULTURE GARLIC, CELERY POWDER, OLEORESIN OF PAPRIKA
  6. So I saw my doctor this week and asked about re-testing. He was still skeptical about diet making any difference in the results but agreed that if I decided to reintroduce gluten into my diet and wanted to re-test he would order it. In the meantime I am still struggling with residual symptoms (GI has settled down but still having muscle aches) even though it's been 2 weeks since stopping the offending medication. Would there be a benefit to getting a GI consult at this point or do I need a positive blood test for that to be worthwhile?
  7. 11 months ago I was in constant pain and tired all the time. I also had persistent eczema and 1-2 monthly migraines. I was worried that I had some sort of autoimmune disorder. I ended up experimenting with the AIP diet for several months and my symptoms significantly improved. After 3+ months on this strict protocol with slow reintroduction of foods, I threw in the towel and went a little crazy with everything including pizza, cake, pasta, etc. After 3 days I was experiencing severe brain fog and quickly eliminated gluten from my diet again. About a month after this, my doctor tested me for Celiac. He assured me that my gluten free diet would not make a difference in the testing. The blood test came back negative but I continued the gluten free diet because it made me feel so much better. During the last few weeks, all of my symptoms have gradually returned, including some new ones (no previous GI issues or insomnia) despite no dietary changes. After a careful analysis, I was able to narrow it down to my last prescription refill. It turns out that my migraine preventative had been reformulated and was likely the culprit. I have been off this med for 3 days and my symptoms are quickly subsiding. Now I'm trying to find a gluten free substitute. Prior to this, I would have assumed my gluten intolerance was on the mild side (e.g.--I've never stressed about cross-contamination), but the fact that something smaller than a baby aspirin could turn my life upside down has caused me to reconsider. I wonder if my initial test results were inaccurate because of my gluten free diet at the time and if it's really worth pursuing a retest with reintroducing gluten. Several months feeling like I have the past few weeks does not appeal to me at all. I see my doctor next week and I'm not sure how far I should push for this. Any advice would be appreciated.