SuzieQ

I know this is an old thread, but I wanted to say that I was diagnosed in February with Autonomic Dysautonomia. I found this thread when looking for link between Celiac and Dysautonomia. My biopsies were negative of celiac disease, but I had high IgG levels. I started a gluten free diet anyway and had no Dysautonomia symptoms for a week after that! The...

Thank you so much Lynne. I will look up gluten ataxia. I haven't heard of that before. I contacted a distant cousin tonight who works in a hospital lab. She doesn't draw blood, she actually looks at things through the microscope. She shed some light on things for me. She said an IgG elevation indicated a past reaction to Gliadin. An elevated IgA...

Thanks all of you for the information and support. I am continuing to eat gluten free and I am still feeling sooooo much better. I will continue to eat gluten free - probably for life. I don't know why, but I have this nagging need to know. I am trying to just let it go without a definitive diagnosis. The main question I still have is this.........

Thanks you guys. "Did your doc do a visual exam, in which he actually looked at the lining through the scope, or did he just take random blind samples?" My doctor said he didn't see any damage, but the proof would be in the biopsies. "Well, either way, you feel better, right? That's a huge something, don't you think? Also, the small intestine...

I got the results of my biopsies back today. They were negative for celiac disease. I am feeling kind of down right now. If I don't have celiac disease, why was my IgG to Gliadin high, and why do I feel so much better since eating gluten free? - not in a brain fog and not nearly as tired since I had the biopsy? Could this all be in my head? I have...

Thank you fritzicurls! I was starting to think I was the only one! He didn't recommend a colonoscopy, but he gave me a card I have to smear three stool samples on and mail in. Oh what great fun!!! It checks for blood in the stool, I believe. I am almost 35 and I had a colonoscopy four years ago before my hysterectomy. The prep was loads of fun!!...

I was wondering if DH has to have blisters? I get a raised red rash sometimes especially while I am asleep where my arm might be folded or the skin on my legs is touching on the inside of my thighs. There are no blisters, but could this be DH too? I have the classic blisters behind my knees and on the inside of my elbows sometimes, but I just wondered...

I am waiting on my biopsy results, and while I wait I have a question. When I last saw my doctor, he noted tenderness of my colon on the left and right sides upon palpitation, but no tenderness in my small intestine. Anyone else tender in the colon area? Thanks

I am sooooo thankful to find this thread! For the last 6-8 weeks I have had the tightness and the feeling of someone sitting on me in my chest that many have described here. When I went gluten free, the pain went away. Since I have been eating gluten again to prepare for my endoscopy - which is tomorrow morning- my chest has hurt so bad. I am too young...

Cape, This is so interesting! I have had burning feet at night off and on for years and have never been able to find the cause. Mine itch intensely also, but there is never a rash or anything. Maybe it's been gluten! I wonder if anyone else here has had that problem? Thanks for sharing Cape.

Thanks Jen! That article is very helpful.

Thanks you guys for sharing your experiences. I really appreciate it. My Gastro appt. is 2/22, so I will try to eat some gluten each day between now and the appt. I don't really know when or if he'll schedule a biopsy, so I want to be "prepared". I think for a definitive diagnosis and for the sake of my child, who if I am positive for Celiac via the biopsy...

I have only had two blood tests done- an IgA and an IgG specific to glutaidin (sp?). My IgG was high. Does anyone know of any other diseases that could cause this to be high while the IgA was normal? I am debating whether or not to even see the gastroenterologist my doctor set me up with. He apparently doesn't know much about Celiac Disease, nor does...

Thanks for the help everyone. The Friday before last when I had the blistery rash that I believed to be DH, I was in my doctor's office for another problem. I have been having problems with what is probably heartburn, so I was including everything I could think of that is related. I had been eating a lot of whole grains (lots of yummy Sun Chips) and had...

Hello All! I am new to the thought of Celiac Disease and this forum. I found out today that my IGA test results were normal and my IGG results were somewhat high - 43. These were both for antigliadin. Does this mean I have Celiac Disease? I talked to the office manager at the doctor's office and she couldn't tell me much. She said these were the only...