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10 hours ago, kareng said:

It's your baby.... but untreated Celiac can lead to miscarriages.  

 I think part of being a mother is doing what's is best for your kids, no matter what your friends or some random relative thinks.  Perhaps you are not ready to have a child yet?  Or maybe you should do a gluten challenge and get tested so you can justify your diet to others or know what you are dealing with?  

 

Edit to add - when you are pregnant, everyone, even random strangers, will give you advice.  Some of it will be very odd or outdated. You can't possibly listen to all them.  You need to be strong enough to deal with  other people's ideas and do what you know is right.

I'm sorry but this is my first day on the forum and I am trying to get more information BEFORE we get pregnant. I don't know everything about this & that is why I am trying to learn. I was trying to get information about NCGI and having a baby- anybody who had experience with that. I don't understand how or why you would suggest that I am not ready to be a mother when you DON'T know me. Everyone has weaknesses - and yes when my family and doctors tell me I am making things up and following "fads" it is hard. Yet when I visit family I still have eaten gluten-free, I bring my own food, it is just hard for me. I was trying to find support on this forum from other people who had similar experiences or information about getting pregnant while having NCGI. Did they eat 100% gluten free? How strict were they about cross contamination? I'm assuming others are in unsupportive communities as well since many people don't believe in NCGI as a real condition but maybe it is just me.  

I am looking into getting a second opinion in light of these posts so thank you so much. I have not been around people who understand Celiac's and so the information I have been finding online about NCGI and pregnancy doesn't have any/much research. Hopefully I can get a clear answer one way or another and if not, I will seriously consider treating my time during pregnancy like I do have Celiacs. 

I would like to but I guess I am struggling with other people not being accepting of that since I have never been tested. :/ When I am at home I pretty much eat gluten free (although I would be MORE cautious if I was diagnosed with Celiacs so I guess you are right). It is just when travelling that I have been struggling. But that is very good advice Thank you!!

I would love to hear advice from other people as well. I as well have NCGI (although I was never tested for Celiacs becuase my doctor thought it could *never* be that and I went off it on my own and have had great health leaps). I am struggling with family members accepting this as "real" and making me feel extremely guilty/uncomfortable for choosing this lifestyle because it burdens others (even though I really try to go with the flow and have been bringing my own food so they can continue to cook their normal meals)!! Anyway, right now I don't eat any gluten products but haven't been super cautious about cross contamination or checking every little thing. My husband and I would like to start trying to have a baby within the next year and I'm not sure whether I should act super strict like I really do have Celiac's or continue eating the way I am. Anybody who has NGCI have experience with getting pregnant? 

Hello!

I have been eating gluten free since July due to a variety of new, unexplained symptoms including stomach problems, anxiety, depression, weak nails, tonsil stones, etc. My doctor (a student in training) told me multiple times that there was no way it was gluten/Celiac's Disease even though my gut told me that it was. So I quit gluten on my own and have FELT AMAZING!!!!!! My symptoms went away and everything has been wonderful!!!!! After discussion with my doctor more recently, I decided that I really don't want to go "on gluten" for long enough to get the official test. So as of now, I just have a "gluten sensitivity" which my entire family tells me is fake but I am just continuing to do it because it feels like what is best for me. 

Anyway, on my honeymoon I decided to try about 4-5 bites of cake at our fancy dinner and had symptoms including a headache and stomach problems. The headache lasted for actually a full week after I ate gluten. Is that normal? Is it possible it was just something else? I also have had a HUGE flare up of anxiety/depression this week (I ate the cake containing gluten about 2 weeks ago). Is there any way that is connected? Anybody having any input would be greatly appreciated. 

Thank you