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Smitten

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Smitten

  1. Smitten
    Thank you so much for that information! I'm wondering if I have both primary & secondary RLS. My dad and Grandma (his mom) both have symptoms of RLS. But, not as sever as mine. As a child I can remember having really bad leg aches when I went to bed at night. I broke my left ankle in September of last year and that's when my RLS REALLY kicked in...
  2. Smitten
    The only side effect I get is an upset stomach even when I take it with food. I'm down to 1/2 dose now. My stomach can tolerate it better.
  3. Smitten
    Are you not sleeping because of the restless legs? I was not sleeping because of the constant urge to move my legs. I would get up a few times in the night and rub the rolling pin over my legs. I am sleeping really well now with the medication Recuip. I really struggled with being on another medication. But, it's well worth it.......i'm sleeping now! I went...
  4. Smitten
    Just an update. All my tests for anemia and other's came back normal. Last night was the first night I slept ALL night. The Recuip is working. Dionnek, I heard pickle juice works great for leg cramps. My husband learned that in a coaching class. Shelly
  5. Smitten
    I personally don't think the soap works, but did try it as a despirate attempt to get some sleep. I agree with you, I hope there's another option other than a medication. I really don't like taking medication, but if it's my only option to get some sleep, I need to do that. ;o) I will let you all know the results of my tests. Shelly
  6. Smitten
    Since I started this post my RLS has gotten SO much worse. Last Labor Day I broke my ankle and I get it so bad in that leg. I started running last week and it intensified it. I was up 2-3 times a night last week. I thought I was going crazy! Sometimes I wouldn't get to sleep until 4:00 a.m. I FINALLY seen my Family Physician today. She prescribed Requip....
  7. Smitten
    I was also referred to a dermatologist because of dry, ITCHY, scaley round patches on both of my lower legs. Right away he said it was just eczema. He said the DH tends to be blisters or rash that are in a snake like pattern (don't quote me on that though, that's just how I interpreted). I can't remember right off what RX cream he gave me, but it's working...
  8. Smitten
    I'm going gluten-free this week. So, I will be curious whether it effects my hypothyroidism. Shelly
  9. Smitten

    ARCHIVED Mayo Clinic Celiac Center

    Smitten replied to Eric's topic in Doctors

    My Gastro called up there to ask questions regarding my situation. So, I say they must be very reputable if my doctor was trying to get advise from them. Shelly
  10. Smitten
    Crushed Ice was the BEST! I even craved cool air during my pregnancy WEIRD. I would get in the car and turn the air on high and just soak it in (obviously I was preg in the summer). I wasn't even hot. Shelly
  11. Smitten
    Jen, it is SO funny you mention ice chewing! When I was pregnant with my second I couln't get enough of chewing ice, I craved it! Both pregnancies my RLS intensified. I did read that some people only have RLS when they are pregnant. Thanks for the advise.......I'm going to get my hemoglobin checked. ) I have not gotten my final dx of celiac yet therefore...
  12. Smitten
    Thanks for your replies! The first time I encountered RLS is when I was pregnant with my first. I often wondered if it could be related to vitatmin deficiency. I pound on my legs, get up and walk or just go to the living room and turn the TV on in the middle of the night. Sometimes ibuprofen helps. I do Taebo 3 times a week so I believe I'm getting enough...
  13. Smitten
    Anyone else out there have RLS? If so, what do you do to try to relieve this? I can be up hours in the night with the constant erge to move my legs! Any suggestions would be appreciated! Thanks!
  14. Smitten
    I don't know if your closer to Rochester, but my mom gets a lot of stuff at a store there. If your interested, I can get the name of it. ) Thanks!
  15. Smitten
    Thanks for sharing. I was hoping for a definate dx of celiac from the dermatologist but, on the other hand I'm glad I don't have DH! Guess my next move is to get the Gene testing. Thanks! Shelly
  16. Smitten
    I seen a dermatologist yestderday to rule out DH. He sayes that I just have eczema. Can celiac disease cause eczema? Thanks!
  17. Smitten
    Well, I'm still in the process of getting dx'd. My doctor actually called a Celiac Specialist at Mayo clinic to see what my next step should be. I'm seeing a dematologist next week for the scaley, itchy patches on my legs. Also, he wants me to get a gene test. I am not gluten free yet. My symtoms are bouts of diarrhea, patches on my legs, hypothyroidism...
  18. Smitten
    My blood test came back negative and my biopsy showed blunt villi. I would go through the biopsy. It was a piece of cake. I'm so glad I did it. I have 5 immediate family members that have celiac and that's why I went through with it. I also had symptoms so I wanted to make sure. Shelly
  19. Smitten
    Thanks for that info! I called and my insurance company does pay for it. But, I don't know whether I'm going to do it or not. I may just go on the diet and see if I get any results. I have five immediate family members that have celiac. My blood tests were normal but my endo biopsy indicated my villi were blunt. My symptoms are bouts of diarrhea,...
  20. Smitten
    Hello, My physician has ordered a test called HLA Class 2 Genotype. Has anyone heard of this or had this done? If you have, did your insurance company pay for the test. I did call my insurance and they stated it was paid for but I would like to know what others have experienced with this. Any info would greatly be appreciated. Thanks! Shelly
  21. Smitten
    I am currently getting more tests for Celiac. One of my blood test were borderline and my bx showed blunt villi. My daughter is 11 years old and 60 lbs. She has had stomaches and bouts of diahrrea. After I get the final word that I have Celiac......she is getting tested! I wish I would have known about all of this years ago. But, she is young yet and if she...
  22. Smitten
    Hope it doesn't last! Get Better!
  23. Smitten
    Do you get "flare ups" even on a gluten free diet?
  24. Smitten
    Thanks so much for the info! Sometimes I do get the scaly patches on my eyelids....but not like my poor looking legs!
  25. Smitten
    I'm jumping in kind of late. I'm "catching up". I don't have a rash but have VERY dry, VERY itchy, scaly spots on both my lower legs. Does DH have to be in a form of a rash? I'm working the the gastro right now. My blood test came back neg but bx showed blunt villi. Thanks!!
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