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radman

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by radman

  1. radman

    Happy birthday and may God bless you today!

  2. radman
    Hi all. Yes, I do think my gut will "complain" when it gets a level of gluten which will cause damage. It will be very easy for me to know, since my bowels have been so different ever since going gluten free. I think I'll eat a nice big Sierra Turkey on Focaccia at Panera Bread for my challenge. I wouldn't say I don't have villi damage, I'm sure...
  3. radman
    Well it's been over 2 weeks now gluten free. My partner brought in our Tuesday morning tradition of Einstein bagels with cream cheese for the whole staff. I had to sit there and watch everyone eat 'em. I sure miss my toasted everything bagel with sun-dried tomato cream cheese. Came close to caving, but I held out and munched on some M and M's (great...
  4. radman
    The newer surgery is done through a laparoscope, so it is minimally invasive, and highly effective. It recreates the lower esophageal sphincter with a strip of stomach muscle. Stomach contents, whatever their pH can no longer reflux into the esophagus. Bernses, your holistic practitioner has given you dangerous advice. You are definitely not better...
  5. radman
    raven: I have been thinking the same thing. Not to screen all patients, just those that may be related to celiac. The largest group of patients would be lower esophageal adenocarcinoma. I've been considering sending celiac panels on those patients to see if there is a correlation. Bernses: Yes, esophageal cancer has a poor prognosis overall...
  6. radman
    Hi folks, I have a thought for all those with severe reflux- consider getting an evaluation for surgical correction of the reflux. The current procedure is called a Laparascopic Nissen Fundoplication. Long term use of proton pump inhibitors (Aciphex, Nexium, Prevacid, Prilosec) is concerning for many reasons. In fact, I was on them myself for about...
  7. radman
    Hi Franceen, Please let us know about the results from the pathology of your skin biopsy. I've read that up to 30% of patients with DH have negative antibody tests, so you may yet be correct in your diagnosis. I would have expected it to improve with gluten free, even if you occasionally cheat. Perhaps you are just very sensitive. By the way...
  8. radman
    OK, here is the very unscientific symptom survey (VUSS) I tallyed up the symptoms of a total of 20 of us (n=20), any symptom by only one person and no others was dropped, and infants/children were not included since the symptoms are quite different. Also one or two of us who clearly had multiple associated complicating illnesses were not included because...
  9. radman
    Hi everyone, I plan on tabulating all of this when I get a minute. Interesting no one has mentioned osteopenia or osteoporosis (unless I missed it scanning the posts). Has everyone had the recommended DEXA scan to test bone density?
  10. radman
    Good morning all, Karen: yes, the article you linked is a good one. It also emphasizes the abnormal IEL's as a major factor in refractory celiac, just like Fasano's article. It also discusses the same treatments- elemental diet, immunosuppressive agents, and possible chemotherapy. There are other potential treatments that come to mind as well, particularly...
  11. radman
    I know what you mean about the cost, but an office consultation shouldn't cost more than $175-200. Perhaps he could just review your history and make recommendations that could be carried out by your physician in Canada. With your degree of difficulty it might be worth the time/effort/and money (I certainly don't know him personally, just that he is a...
  12. radman
    I don't understand why you say you don't beleive in refractory celiac. Collagenous colitis would have nothing to do with persistently flattened villi in the small bowel, even though it is clearly a problem in its own right. Dr. Fasano has written about refractory celiac. I won't go into the details, but it may be worth your while to see him for a second...
  13. radman
    Karen: I understand that you have refractory celiac based on persistently flatenned villi, but do you have persistent malapsorption/diarrhea and if so how severe? What type of evaluation have you had regarding the cause of the RS (refractory sprue)?
  14. radman
    The variability of celiac is clear, I suppose it is just like other diseases where there are different levels of intensity. If you think about seasonal allergies for example, some have a little sneeze now and then, some can't go outside without an asthma attack. The other thing we know is that the extent of intestinal involvement varies. Some/most only...
  15. radman
    Hi Vydor, I think the issue of cross reactivity is getting confused because the same term is being applied loosely to very different issues. The thread you linked was talking about your body "cross reacting" to proteins similar to gluten. What I have talked about in reference to cross reactivity was something entirely different, namely that the antibodies...
  16. radman
    Well, nothing like reading the, um, interesting posts on the celiac board to get your mind off another day of misery and pain at the shop. Now, what I had in mind regarding dancing on tables was more of a Greek-type stomp after heavy indulgence with tequila, certainly not something that would require a Little Mynx dance pole. Remember, we've been...
  17. radman
    Well, another gluten free day comes to an end. Almost gluten free i should say. I took a bite of my daughter's baked potato soup, quickly realized it probably contained flour, but didn't feel like spitting it out at the restaurant. Other than this though I'm clean for another day. I did have to throw away my midday snack before eating it. What...
  18. radman
    Hi all, well lots of good info today. I am comforted to know that I have a wide variety of gluten free alcoholic beverages with which to slowly pickle my brain. Thanks Karen However, let me just say that the majority of those on the delphi list are not acceptable to the klan of the cave bear. I will lose great social standing if I drink any...
  19. radman
    Hey, thanks everybody! I now feel officially welcome, and not (universally) hated anymore. And I appreciate the opportunity to be part of a great group of people. But I still reserve the right to tick you off occasionally, otherwise it would get kinda boring. And please return the favor
  20. radman
    Lisa, thanks. I have seen references to shampoos and things, but I don't see how that can cause any reactions since the gluten protein is way to large to be absorbed across the skin. Besides my only reactions are in the gut. And so far my gluten free diet is going very well, and my bowels amazingly continue to be nice normal sinkers (I can...
  21. radman
    Hmmm so this is interesting Skoki's sister can drink scotch (grain based) without a problem despite gluten sensitivity, but Rusla can only drink non-grain based alcohol (tequila, vodka, wine, rum). Could it be that there are minute amounts of small protein fragments (peptides) in the grain distillations that only the very sensitive would react to...
  22. radman
    I think a little personal experience may be better than fancy links for this. Who drinks what and gets away with it? (celiac wise)
  23. radman
    So Vincent, how do you know that the gluten is removed in the distilling (though it makes sense)? If this is the case, then I agree with the Makers Mark on the rocks. Of course a margarita or tequila shot on a more festive occasion is perfectly safe irregardless, which is nice to know. But still, sometimes there's just no substitute for a cold beer...
  24. radman
    You guys seem to be forgetting that I am talking about my fellow males here, not humans. They don't reason about these things. Seriously though, I wonder, at the risk of setting off another, err, opinionated discussion, just how much gluten is in a distilled beverage. Long before I knew about my celiac, I knew that my gut did not tolerate beer...
  25. radman
    Vydor: I was initially happy to see that a gluten free beer was available, but as I think about it I doubt it will help with this particular problem. "What'll ya have? Bud, Coors, Guiness?"... "Uh, have ya got a gluten-free Grist Mill?" But this will be good to have at the house to drink with the ocassional barbeque. Rusla: Good advice as always...
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