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radman

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Everything posted by radman

  1. radman
    Ok, on a lighter note, I need some practical advice. My neanderthal buddies only know one way to socialize, and that is over a beer. A beer after work, a beer after golf, a beer while the wives talk. Since I can no longer drink beer, I keep making excuses, but I'm running out. They are suspecting I may be turning into a panzie a$$. If I tell them I...
  2. radman
    Good evening everyone, Fiddle: I must admit ignorance about CF, to me this means cystic fibrosis, and I don't think this is what you mean. I'll look into the sourdough issue further, but I am not optimistic. The microorganisms responsible for sourdough's sourness work on carbohydrates, not proteins like gluten, but then perhaps there's more to it. And...
  3. radman
    Skoki: The answer is- a pit bull lets go when it is clear the person is finished? sorry that was bad Fiddle: is this the question: Hi, radman, I was actually wondering (don't shoot, guys!) if small amounts of the "right " kind of gluten (fermented, like sourdough) might not only avoid triggering the celiac thing, but also might...
  4. radman
    Since the symptoms I would get with a dietary lapse are bothersome but not severe, the main problem with an occasional lapse comes down to whether this would cause serious long term risks. As I've mentioned before, the risks come down to essentially 2 things, osteoporosis and intestinal lymphoma. Since following a gluten free (or even mostly gluten...
  5. radman
    Hello everyone, Nantzie: yes I am in Fredericksburg, and the Virginia countryside is beautiful as spring is springing. Unfortunately, we are now essentially exurban DC so the traffic and crowds make is more difficult to notice sometimes. And Mr. J has some interesting comments, plus his post is even longer than most of mine Never considered...
  6. radman
    You guys are so dang sensible. Isn't anyone else here reckless and irresponsible? (jusk kidding folks ) I've been considering why I seem to be the only one (well actually there may have been one or two other posts thinking like me) willing to even consider an occasional teensy weensy lapse now and then. Possibilities: 1. My symptoms...
  7. radman
    Hi all, thanks for the concern about my health, I am pretty foolish (at least my wife frequently tells me so), however, I am not planning on eating a low gluten diet yet, I'm just wondering if it would be possible. For now I am trying to stick with a complete gluten free diet, though I keep making stupid mistakes, like that bite of clam chowder yesterday...
  8. radman
    There is no significant increased risk of colon cancer with celiac. The risk is for small intestinal cancers, primarily lymphoma and to a lesser extent adenocarcinomas. Both of these are extremely rare.
  9. radman
    It appears from the posts on this thread, and from what I've read, that the ataxia is reversible with a gluten free diet. Now if the damage to the cerbellar neurons caused cell death, there can be no recovery since we all know CNS neurons do not regenerate (thus spinal cord injury is permanent). However, it is possible that the autoimmune injury to...
  10. radman
    Yes, the point is zonulin regulates gut permeability, and too much zonulin allows large proteins like gluten to get through the lining cells of the small intestine, allowing our immune system to "see them", and then react and create antibodies. It is not the antibodies that leak in, they are already "in". It is the proteins in the gut like gluten that leak...
  11. radman
    Good morning Raven, I'm so glad you're ataxia went away with gluten free diet. That is helpful to know, since It wasn't clear in the reports I read whether this was reversible. I suspect what is happening is cross reactivity of the antibodies formed in response to gliaden. These antibodies are like "keys" that only fit specific "locks", the lock in...
  12. radman
    Some support for a "Low Gluten Diet" vs. Gluten Free for some celiacs Gut. 1988 Nov;29(11):1564-8. Related Articles, Links Comment in: Gut. 1989 Jun;30(6):888. Low gluten diet in the treatment of adult coeliac disease: effect on jejunal morphology and serum anti-gluten antibodies. Montgomery AM, Goka AK, Kumar PJ, Farthing MJ, Clark ML...
  13. radman
    A UBO, or bright area on T2 MRI, usually represents some type of injury to myelin (the "insulating" sheath around nerve fibers in the brain). The type of myelin injury appears to vary widely from complete loss (demyelination) to slight abnormalities. The UBO's are typically scattered throughout the deep white matter of the brain. They cannot be due to...
  14. radman
    Hi all, My strict gluten free 24 hrs was spoiled by a fortune cookie. I was told it had no flour, just cornstarch. Later I googled the company and checked the ingredient list--Dang...Wheat flour. But that was last night and so far no ill effects Hi Ravenwood. UBO's are not diagnostic of anything anywhere, believe me I see them all the time...
  15. radman
    Hi Nantzie, I really appreciate your comments and have thought about them, and I think you have given me very good advice and perspective. I don't know that I'm totally convinced yet, but it is powerful logic. And I trying strict avoidance at this point. And gfp, I looked at the article on neurologic manifestations of celiac, and it was very very...
  16. radman
    I think besides my celiac I should get tested in psychiatry for my persistence in coming back and blathering on to you good people. But in the meantime... Hey gfp, all of what you say may be true, but I can tell you that worrying about all the possible problems that could possibly be related based on very inconclusive science is not my bag (as Austin...
  17. radman
    Egg and cheese on a corn cake for me this morning. I gotta find some of those Gorilla things. Vydor, I understand your cigarette analogy, and as I've said before the prudent person would simply avoid all exposure. However, smoking an occasional cigarette may not be recommended, but if it is only occasional it will not greatly affect health risks....
  18. radman
    I agree with everything you said CMCM, and I personally doubt the cancers, such as prostate, have anything to do with celiac. And thank you all for the welcome, I hope I can repay all of your helpful advice with an occasional worthwhile comment. Now tomorrow I'm going full out strict gluten free, no corn pops tomorrow.
  19. radman
    Hi all, Thanks for the great links. The BMJ article is very helpful. It shows a relatively modest excess risk of malignancy which to me is reassuring. More importantly, the excess risk primarily in the first year after diagnosis. This time frame implies diagnostic bias, rather than cancer caused by the celiac. This would be expected to take years...
  20. radman
    Hi Ehrin, sorry my analogy didn't sit well with you. My purpose is not to analyze diabetes, my only point is that diseases are highly variable from person to person. Not everyone is the same. Diabetes, breast cancer, high blood pressure, you name it . They all vary in severity, and the treatments are tailored to the severity. Not paying close attention...
  21. radman
    Good morning everyone! I've read all the posts and appreciate all the information. And halleluah for mallysmom and skokimom and some of the others who can relate to my initial comments (about strictness of the diet for things like buns touching burgers). I see that there ARE others with less severe symptoms who have been wondering about these things...
  22. radman
    OK, enough of the hate talk. I understand how serious the bad experiences with doctors have been for some here. I really do. Thanks Annette, I agree that we need to work to "mainstream" celiac. That should be the goal of us all. I too have seen Dr. Fasano's estimate of 1:133 in the American population. If this is anywhere close to true there are...
  23. radman
    Hi everyone, well the gluten free pizza I spent all evening making was horrible. Now I must continue my quest for a reasonable facsimile, the Gluten Free Pantry mix tasted like potato flakes. Now, I'm gonna try again to share, but try not to be too judgemental. I was asked about my experience with doctors trying to get a diagnosis, and the truth...
  24. radman
    I don't know what proportion the poop problems occur in, but I suspect a large percentage. I for one had floating smelly loose BM's as just about my only symptom, and it goes away when I don't eat gluten.
  25. radman
    Some of you folks are so blinded with anger and hate that you fall into the proverbial trap of lumping every member of a group together. Prejudice, group think, malice, it all springs from the same fountain. Yes there is a major problem with the medical profession diagnosing celiac disease. BUT I am a victim just like you. I am 42 years old and have...
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