Jump to content

fanfaire

Advanced Members
 View Profile  See their activity

  • Posts

    13

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by fanfaire

  1. fanfaire
    Last October, I went to Hawaii on vacation. The plane flight was almost eight hours, and I asked the airline to provide a gluten free meal. I found out that they had discontinued this option, which meant I was going to have to bring my own food. I e-mailed the airline asking them to reconsider. I even gave them ideas on simple changes to their meals that...
  2. fanfaire
    Have not been able to find any info on whether or not egg nog is safe. Does anyone know? And if the commercial brands aren't ok, does anyone have a recipe so I can make my own? This is one holiday treat I've really been missing. fanfaire
  3. fanfaire
    I can't seem to find any info on this. I found a wonderful recipe for cheesecake (no flour) that calls for vanilla extract, but I have no idea if it's safe. Could someone who cooks please enlighten me?
  4. fanfaire
    My favorite gluten-free bar is the Boomi Bar, the Almond Protein Plus one. It contains only almonds, honey and whey protein and tastes like an almond cookie. It has 12g of protein per bar. There are very few health bars I feel comfortable eating because I'm supposed to avoid chocolate and excess refined sugar due to other health concerns. Here's the...
  5. fanfaire
    This is a very interesting topic....I had no idea celiac disease could contribute to sleep problems. I already have plenty of problems both with fatigue and with not getting good sleep due to fibromyalgia and Sjogren's. My doctors are stumped as to how to fight this horrible fatigue. I fall asleep at church and at work, even if I've had 10 hours of sleep...
  6. fanfaire
    In the U.S., medical expenses that exceed 7% of your income are deductible. If you count meds, insurance, doctor's fees and lab fees along with your gluten-free food expenses, it is feasible that you could exceed 7%. In 2003, I paid over $8000 in medical NOT counting gluten-free food or all the OTC products I have to use for Sjogren's (eyedrops, special toothpaste...
  7. fanfaire
    I've been trying to find an answer and am getting a lot of conflicting information. My bloodwork and biopsy were both normal, so the gastro doc said I didn't have celiac disease. Yet I was extremely symptomatic for six years, which was blamed on IBS. I voluntarily went gluten-free in November and saw dramatic improvement after two months. Could it be that...
  8. fanfaire
    AntiGluten, I'm wondering if it's possible that you have food allergies in addition to celiac disease? That it's not necessarily just gluten that sets you off. I could be wrong of course, but I thought I'd just throw that out there. Have you ruled out other autoimmune diseases? Brain fog, mood swings, etc. also occur with hypothyroidism, connective tissue...
  9. fanfaire
    Because of my many ailments, I don't get out much in public anymore. I still enjoy going to movies, though. Last weekend, I tried to find out what at the concession stand I could eat. The employees had no idea what was in what they were selling. Does anyone know the status of movie theatre popcorn? I'd bring my own food, but that isn't allowed.
  10. fanfaire
    Thanks for that...unfortunately, none of those brands are available where I live. We have Viva, Meadow Gold, Horizon (the organic kind I'm currently eating) and store brands. I contacted Horizon to ask about this and got no reply. Hmmmm....
  11. fanfaire
    Hope this isn't a dumb question, but I can't seem to find any info on whether cottage cheese contains gluten. I've switched to a lowfat organic variety made by a local company because it contains fewer chemicals than the national brands, but I'm still not sure. If regular cottage cheese does contain gluten, could someone tell me the suspect ingredients...
  12. fanfaire
    Woo hoo! Thanks so much for the list! I'm new to this also and get soooo confused and frustrated. I can't seem to remember the no-no ingredients as well as I can specific brand names, so this will help a lot. This will save me a lot of wasted energy reading labels and then putting stuff back when I am unsure. Bless you!
  13. fanfaire
    I can definitely relate to this business of being overwhelmed by multiple illnesses! I don't even have a celiac diagnosis, which complicates things. The biopsy and the bloodwork were negative, but I do have gastroparesis (paralyzed stomach muscles), so the gastro doc was blaming all my digestive troubles on that. When I suggested in November that I try a...
  14. fanfaire
    Hi! This is my first post here, so please bear with me. I have checked all my meds against the lists provided on this site and in a book I have, but there are still two that I can't find listed. The first is Evoxac, which is for Sjogren's syndrome. The second is Domperidone, which I take for gastroparesis (also caused by Sjogren's). Does anyone know if these...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.