Irishlass

I think what is more telling than any blood test could be is her reaction to adding gluten back in. Hopefully when you are done with testing her she will go back to gluten free.

Oh, that's a definite, even if we don't get a positive test- all of her symptoms have returned except joint pain, and I expect that soon. Her symptoms are even worse this time around. They are: headaches, fluid in her ears (so bad she can't hear anything), tightness in her chest breathing (having to use asthma inhaler), stomach discomfort, occasional vomiting. keratosis pilaris rash back with a vengeance (she had it from birth and had completely cleared off of gluten), frequent waking at night. I'm sure I'm missing something, but I can't think of what it is.

My 10yo was tested 3 years ago for celiac. The tests were negative, but she improved afterwards on a gluten-free diet. Some other members of our family have been diagnosed celiac with positive tests since then and we've decided to get dd retested, and our other children tested as well. We've put her back on gluten to retest. It's been 3 weeks now and she feels horrid.

I wanted to get y'all's opinion on the test results from her 1st round of testing. The IgA is def negative- but the IgG and tTg, while negative, still look high to me- remember these are from when she was 7. It's interesting that she was also very neutropenic, and the dr had us come back every 2 weeks to check those levels. After being off gluten a month, her neutropenia was resolved. I just read the other day that celiac can have such an effect on the immune system.

In any case, here are her test results from 3 years ago:

Antigliadin Abs, IgA Result: 1 Limits: 0-4 Positive: >4 Negative Result

Antigliadin Abs, IgG Result: 6 Limits: 0-9 Positive: >9 Negative Result

tTg IgA Result: 1 Limits: 0-3 Weak Positive: 4-10 Positive: >10 Negative Result

tTg IgG Result: 1 Limits: 0-5 Weak Positive: 6-9 Positive: >9 Negative Result

Endomysial Antibody IgA Immunoglobulin A, Qn, Serum Result: 132 Limits: 32-305 Positive>305 Negative Result

Anyone have any insight? Much appreciated!!!!!!

My dd had a negative blood test, but her symptoms disappeared as soon as we took the gluten out of her diet.

Your dd's body is definitely telling you something- do you need a positive blood test to confirm what you probably already know?

I was going to use the graham cracker crust in Lisa Lewis' Special Diets For Special Kids book along with a regular pumpkin pie recipe for the filling. The pumpkin pie recipe I use calls for an unbaked crust, though. Has anyone tried a "graham" cracker crust unbakes with pumpkin pie?

I'm wondering about freezing it too- we have to travel 13 hours for T-giving, and I'd like to be able to make it ahead.

Any luck there, anyone?

We're traveling to Williamsburg this weekend.

Anyone had experience traveling gluten free to W'burg?

Our celiac is my 7yo dd.

Thanks for your thoughts everyone.

I do have a great dr- team of drs, actually. The dr we saw is in a two dr practice with the lady who is our main ped. She's been traveling a lot lately because she does a lot of autism research and is the DAN network's head dr.

Anyway, is there anywhere on the net where there is a list of manufactured products that are gluten free- foods, body care, etc?

My dd has had allergy troubles all her 7 years, and joint pain most of them too. Her joint pain has increased the past couple of months, so I took her into the pediatrician today. After examining her (her stomach was very tender) and looking again at our history, he said the first thing he could think of was celiac. He sent us to the lab for blood tests for celiac and other things (RA, etc) and recommended that after the labs are drawn we go ahead and put her on a gluten free diet. He said the test may come back negative, that it often will even if there is a gluten problem, but that her clinical experience would be the real deciding factor- if the diet helps then that's the problem.

I went to our natural food store and got some gluten free products to replace some of the things we normally use. After perusing through the forums, though, I freaking out a little... shampoos, soaps, there are probably a dozen more things I can't think of that may have gluten in them.

In the initial phase, how important are the other stuff- is the food the most impt thing at first?