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About bev40

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  1. Hi Its me again Thank you all so much for your replies and your caring attitude. Today is the first day of my gluten fee diet AGAIN!! No, i don't want to be ill so i have only one choice. Thank you for hitting that home. Now, during my research of the gluten free diet i discovered that wheat is to be avoided. Yesterday i picked up a packet of walkers crisps (potato chips i think you call them) On the back of the packet is stated 'suitable for vegetarians suitable for coeliacs' so i ate them. Imagine my horror, when reading the ingredients it stated one of the addiitives was derived from wheat! I sent an email pointing out that although the packet said 'suitable for coeliacs' the product actually contained wheat, there reply to me is 'gluten is not the same as wheat and they dont actually have to put derived from wheat on their ingredients list but they do it for the consumer' and they are sending me their list of all products they make that are safe for coeliacs. How can they possibly state 'suitable for coelaics' then list wheat as an ingredient? Is it me getting it wrong or is it them????
  2. Hi! Im a mum of 4 from yorkshire, england too! Huddersfield to be precise. Not diagnosed but suffering all the same
  3. hi please forgive me, im just here for a moan. I went to see the consultant for the results of my biopsy, not a very nice man, didn't have time for me, didnt want to listen to me, told me the biopsy was clear, i don't have coeliac but if i want to 'go away and look things up in books or do research myself on the internet then go away and do that and dont bother coming to see me' Needless to say i was rather upset at his attitude, i had been feeling so well after coming off gluten and tried to tell him, after all i have been ill for 12 months now, he nade me feel like a complete idiot, like a hypochondriac who spends all days researching her aches and pains on the internet. He did tell me that my parietal cell autoantibodies were very strong though, if anyone knows what that means, he says it indicates i have pernicous anaemia or B12 deficinecy, he ordered more blood tests but ive not had any results yet. BUT..... the reason why i am here is because i have gone completey off the wagon re gluten, i am eating more or less anything and all my symptoms are back, the joint pain is horrendous, i have brain for and depression and i feel a total wreck! I was doing so well and feeling absolutely fantastic, i had even lost 1 stone 9 lbs without trying. Now my stomach is bloated again like im five months pregnant and i have the worst stomach pains ever, ive also developed a terrible pain under my ribcage at the right hand side, just like a deep stitch. I feel a mess. But i jus cant seem to get motivated again. The depression itself makes me want to eat then when i eat i feel depressed, the pain makes me want to eat, everything makes me want to eat!!!!!!! Ive also developed a real craving for milk, i just cant get enough of it and am drinking it pint after pint although that too gives me a terrible pain like heartburn. I dont know which way to turn, i refuse to go back to the doctors who just treat me like an idiot. Ah well, i think thats enough moaning for now, im sorry guys, i know i should pull myself together and just go with my body and what feels right, just at the moment thats is easier said than done. Thank you for taking the time to read PS can anyone recomend any supplements i can take that may make me feel a little better or make things easier? Any advice gratefully received. Thank you BevX
  4. Hi Lorraine Im with you on this one - wholeheartedly! I have been suffering with a mulitude of symptoms too for many years. When the last consultant i saw suggested i might have celiac disease and ordered the tests i did my own research and it was ike a light bulb going on! I had the tests and then decided i had nothing to lose by cutting out gluten, after about 10 days i had a clear head and a lot less pain as well as other symptoms diminishing. Recently i have tested my reaction to gluten and it is not good, the pain came back 10 times worse, my stomach bloated so much i had to wear a size larger trousers and i generally feel terrible, very depressed. I get my test results on the 22nd may but i know that whatever the results are i am staying clear of gluten for the rest of my days. I have had a taste of how it feels to be well and happy after far too long feeling ill and depressed. I dont want to go back there again. Take care Bev
  5. Thank you to everyone who replied to my long winded post i appreciate the warm welcome, you are a lovely bunch! Could i ask if anyone does or maybe has suffered from fingernails that just split, break and refuse to grow. Mine are in a terrible state, as if they are peeling in layers for want of a better description. I wondered if it was anything to do with whats happening to me. You know, ive done quite a bit of thinking since i got ill and this illness has made me wonder about my dad. For 15 years he had Rheumatiod Arthritis, he was crippled with pain but he also suffered from chronic stomach pains and had constant D (i never did get the hang of spelling that word)! One day he had a haemorragh from his bowel (bet ive spelt that wrong too) and was admitted to hospital for tests, he had a colonoscopy and edoscopy amongst others. Sadly my dad died suddenly before we got the results but the day after his funeral we found out he had stomach cancer. Cant help but wonder if maybe he had something going on in the gluten department too. Thanks for listening again Good wishes to all of you Bev
  6. After years of suffering which became so much worse in the last year, i have been gluten free now for 3 weeks and already i feel so much better than i have in such a long time. And its a wonderful feeling! I am a 41 year old female from England and up until 3 years ago i was fit and active and had a wicked sense of humour, i loved life and i lived it to the full, well, almost My problems started with a constantly bloated stomach, constant constipation and a weight gain that seemed to be out of my control. I also had a general malaise with a feeling of depression that i could just not shift. I spent hours and many pounds in health shops trying to find a solution. Everything that was happening was complete;y out of character for me. Over the following years my problems persisted but added to them was skin blemishes and a chronic fatigue and the depression increased. The problem got so bad and i felt so miserable and unwell but i just couldnt put my finger on why i was feeling like i was. Things came to a head last july when i collapsed at work and the doctors thought i had had a stroke as i had numbness and pins and needles in my face, arms and legs. After further tests its was thought that i had MS as by this time i couldnt walk properly and i was having problems with my balance and suffering from night blindness as well as burning in my limbs. I felt as though i was dying on my feet. I suffered from a constant brain fog, not being able to recall or remember anything. A month ago i went to my GP with exhaustion, i just did not have the energy to move let alone do anything else. Blood tests revealed that i am anaemic and my GP being the good egg that she is wanted to know why so she referred me for tests on my bowel stomach. I had more bloods taken, an endoscopy and a very unpleasant colonoscopy. While taliking to the consultant he said he was going to test me for coeliac disease. I had never heard of this before so once i had recovered from the camera action i decided to look it up on the internet. Oh boy! It was like a light bulb going on! Thirteen years ago i was dx with thyroid disease which i discovered can be linked to coeliac disease. My thyroid has never ever been stable. I have blood tests every 3mths and my medication ranges between 175mg and 200mg. I also discovered that unteated coeliac disease can cause the exact neurological problems i was experiencing. I was so excited at all i discovered that i decided i had nothing to lose by giving gluten free a go. And here i am, 3 weeks later, brain fog gone, jpint pain gone, fatique much improved and i can walk properly!!! I am not self diagnosing or anything like that, im not jumping the gun beofre i get the test results and saying that i have coeliac disease but, i know for sure that i am feeling so much better than i have in a long time. Regardless of the test results i will stay gluten free. I have recently gone dairy free too after realising that i wasn't reacting very well to milk. When you have experienced feeling well after feeling so ill you certainly recognise when you are feeling ill again I discovered your site whilst doing my research. I hope you dont mind my introducing myself and saying hello. Im sorry if i have waffled on a bit and i hope i haven't bored you too much. Its the excitement - i can hardly contain it I could have gone into more detail but i don't want to be 'expelled' at such an early stage I would welcome any responses, especially from people who may have experienced similar problems to myself. Thanks for listening
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