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sarahjo

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  1. Does your medicine have gluten in them? They say sometimes it does get worse, but i don't want to say that to you, with all your other medical problems i am a little earie that it isn't something else, how do you feel now?
  2. our celiac child has a dog, we put the food into container, she carries the dish and tries very hard not to touch it. As far as the dogs licking her, would it help to give them their food and then some water, it will rinse of some the residue...we go to the allergist next week because she keeps breaking out into hives, i wonder if it is from that? umm
  3. Hi I haven't been on here for quite awhile....I have a daughter that is gluten-free, (and one with celiac and cf) Our school system isn't much help. You have to have a doctors note to provide certain snacks. We just send a container with fruit snacks in them, on holidays we supply our own treats for her. She takes her own lunch daily. We bought a good...
  4. sarahjo

    ARCHIVED I Am Done With Dr's

    BEEN THERE DONE THAT!! good for you. you know your body, we have been down the same road with our daughter..she has a feeding tube, asthma, iron defiecincy, and sleep apnea. we didn't listen to her body before listening to the doctors. you will definently find lot of support here, good luck
  5. we use to have our daughter the garden of life probiotics, she did good we just continued them until her bowel started to average out, (you could see stuff in her diaper, once that started to disapeer we slowly stopped using it,) sounds gross i know...don't know if it will help you, but i do believe they work we could see the bad in her diaper...if they...
  6. I use to be bulmic and i had to have one tooth pulled (in the way back) because the acid deteroted away. i use to binge and purge alot, so you shouldn't have to worry about that. just check with you dentist, they can help you with them. as far as the reflux the doctors had my daughter go back and wheat for about 5 months (for testing, which she got to...
  7. hi i have daughter that gets neocate plus through her g-tube. she seems to tolerate it well, i have never tried the other kind. we were on nutramigin, but it contains milk. (she is allergic) it is very expensive. well i wish you good luck.
  8. my daughter doctor finally agrees that my 2 year old has it, he has no proof, just that she improved on the diet and failed with out it, i mean physically failed. she has a feeding tube, iron deficiency, asthma, and sleep apnea. on the diet the only thing was the tube until she was fully norished again. it took me a year to find a great doctor. when...
  9. i know how you feel. it took my aunts over a year to even consider that katarah could have celiac, i stuck to my guns with the idea and now that she does they are trying hard to understand. my one aunt even thinks she has it. (I laugh to myself because she gave me the hardest time, she complains about it, but yets eats bread....) i have said that gluten...
  10. we thought that our 2 year old might have it, but when she is milk, wheat, gluten free she improves dramatically. the medicines for add have nasty side effects. there alot of books that explain the relationship between the diet and add/adhd. to be honest i wouldn't give my kid the medicine before trying the diet. you need to do what is best for you and...
  11. sarahjo

    ARCHIVED Finally A Great Doctor

    We are so lucky to have a great doctor, but don't get me wrong all the other specialist don't agree. but as long as out main doctor does, that is all that matters to me. katarah has already started to feel a little bit better, not a whole lot but better. I am exhausted, drained, yet at the same time relieved. you probobly never hear someone say yeah...
  12. hi i don't know if i will be any help but a few years ago i was bulmic, and during high school i had 5 friends committ suicide in 6 months, so needless to say I tried it to. first of all you are doing what my mother did, is to be there and try to understand. she never left me alone, and always told me she loved me, it drove me crazy, i yelled at her ,...
  13. sarahjo

    ARCHIVED Finally A Great Doctor

    my doctors office asked me for advice on celiac, they have done the work and I have been raising a celiac toddler. (They just agreed with me that she has it this week) I have never been so suprised. I put my foot down and never gave up, i knew she had celiac, they tried to prove it medically, but she got sick and sicker before they could get accurate test...
  14. from what the doctor says her t&A are physically to large. she is very small, and it wouldn't suprise me. we go to see and ent next week. are all these problems normal with celiac? i had brought my aunt with to support me, and since she was there, the doctor looked at me and said no problem start her on that diet. i believe he is waiting for no...
  15. I went to the doctor today, he agreed to put katarah on the Gluten-free Casein-free diet. i think he doesn't think anything will happen. he didn't want to perform the biopsy. he had a pulmnologist come in and speak to us. now we are also treating her for asthma, iron defiency, and we have sleep anpnea test on friday, we are going to remove her tonsils...
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