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SuperBeck

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Everything posted by SuperBeck

  1. SuperBeck
    Thanks so much for your reply. Is it common to get a rash on inside of foot? I've read a lot about legs and arms, but not foot. I plan to make a derm appt. Will I have to have rash active for the area to be biopsied? Also, should I be on gluten foods at the time or doesn't it matter? I've been gluten-free for 4 months except a few times. Beck
  2. SuperBeck
    Hi, I was wondering if someone with DH could share their experiences with skin reactions after gluten exposure. Here's a little background: Celiac runs in our family but we all tested negative. I've been gluten free for about 4 months b/c my children are gluten-free due to other non-celiac issues. I didn't get biopsied but noticed since going gluten-free...
  3. SuperBeck
    My dd is 5 (she was 4 at time of blood test). Do you happen to know when they do a genetic work up to investigate "failure to thrive" would they look at her genetically for celiac disease? Her ped endo is really good and has been responsive to my inquiries and requests for tests. I plan to ask her to do an updated panel on her and include celiac disease blood...
  4. SuperBeck
    Hi Vicki, Thanks for the reply. Can you tell me other things that we should investigate? I just realized, the numbers I posted were incorrect. The only thing that was positive is the Antigliadin Abs, IgG , NOT the ttg. (My mistake--I'll edit for accuracy.) Is there anything to worry about with a positive igg? Beck
  5. SuperBeck
    Does anyone have any info on IGF-1 deficiency and celiac disease and kids? (I did a search here and couldn't find any.) My 5yo daughter has been dxed with IGF-1 deficiency/growth hormone resistance and I'm am reconsidering celiac disease. Other than poor growth, she also has very large hard bowel movements, and a distended tummy. She was blood-tested...
  6. SuperBeck
    Oops, I posted this in the wrong section.
  7. SuperBeck
    Can you have dried fruit? I love mixing raisins, dried pineapple(chopped up), banana chips, and dried apricots. SOOOO yummy and filling. >|< SuperBeck
  8. SuperBeck
    Just got my blood test results back: Celiac Disease Comprehensive Antigliadin Abs, IgA 1 Negative 0-4 Antigliadin Abs, IgG 1 Negative 0-9 t-Transglutaminase (tTG) IgA 1 Negative 0-3 (Note: tTG has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificyt for gluten sensitive...
  9. SuperBeck
    Thanks, that's good to know about the hives. I suspected that. Sooo, are the tests I listed above complete? SuperBeck
  10. SuperBeck
    How about an article that provides cost-saving ideas for buying gluten-free foods? I'm FLOORED by how much everything costs in the stores: the Xantham gum, flours, and gluten-free snacks ... it's ridiculous! Other than Whole Foods I don't know ANYTHING about buying from other sources. In fact, it's daunting looking at the amt of online souces for gluten-free...
  11. SuperBeck
    Hi Team, Just wanted to let you know my 3 yo was not allergic to any food pricks today. They tested about 30 things including wheat and milk. (I know that casein and gluten intolerance wouldn't show in an allergy test.) The allergist wrote up the Celiac test for us, which we will do tomorrow on both girls after my 4 yo's tests. He said we should see a ped...
  12. SuperBeck
    My girls have a few hours before celiac disease panel and allergy testing. Should I give them a TON of wheat right now? Will that promote any existing antibody activity? SuperBeck
  13. SuperBeck
    Thanks Kristy! Well, I won't rule the allergist completely out then. Is RAST standard, or do I need to ask for that too? My DDs' doc ALREADY looks at me like I'm neurotic over my DDs' health. (So does my entire family,actually!) I'll keep on keeping on!
  14. SuperBeck
    Thank you all for your replies. RATS!!!!! I had a suspicion an allergist wouldn't be the best person. I had asked the girls' pediatrician before making the allergist appt, and she (and the allergist receptionist) said they do blood testing for celiac the day of the scratch test. The thing is, the girls get hives, so I was hoping to find out if they were...
  15. SuperBeck
    Hi, My DDs are about to go thru allergy testing with an allergist on Thursday. My 4 yo gets hives on her stomach at least once a month, and has a rash on the back of her arms all the time, EXCEPT-- right now, of course. (Rats!!!! I was SO hoping the allergist would see these blisters with his own eyes!) She alternates b/t slight constipation and D. She...
  16. SuperBeck
    I'm an Export ... Brit in America, and lovin' it baby! LOL! Interesting idea. What reaction would a person with casein intolerance have ... big-time D????? For now, I'm going to avoid milk, yoghurt, and cheese for a few days, and then add a bit of milk to my tea and see how I do. So are you saying that casein would actually damage villi the same way gluten...
  17. SuperBeck
    Thanks Chelsea. Wow! How does one determine if they are casein intolerant? Is there a test (blood or challenge)? Love your Latin btw ... made me chuckle! >|< SuperBeck
  18. SuperBeck
    Thanks everyone! Makes sense. Ursula, Are these people eventually able to have dairy once intestines have healed? Is dairy sensitivity the same as gluten, meaning a little may as well be a lot? I mean, can I still have milk in my tea (I'm a Brit!) if I give up all other milk sources? One other thing, why is a person with celiac disease effected by a...
  19. SuperBeck
    Just wondering: If someone WITHOUT Celiac or gluten intolerance goes gluten-free, will anything happen to them? e.g, will their bowel movements change alike a person who does have celiac disease? I don't have a formal DX, but I've gone gluten-free and the first few days thankfully my diarrhea stopped, but now it seems dairy effects me. I never had a problem...
  20. SuperBeck
    Please help me .... I'm new to the forum. I've been looking for a long time for an explanation as to why my 3 and 4 yo DDs have not been growing properly over the past year. Perhaps during my search I've become neurotic and classified them as so many different things (eg. hypothyroid and anemic, but blood tests were borderline), but I really think I'm onto...
  21. SuperBeck
    Perhaps the grease from the fries alone could cause diarrhea, especially if he's not used to eating greasy food. >|< SuperBeck
  22. SuperBeck

    ARCHIVED Doctor In Raleigh/cary, Nc

    SuperBeck replied to Dana's topic in Doctors

    Hi Dana, Well, I'm not sure about NC Allergy/Arthritis Clinic yet. My doc is working with me and spends a lot of time, which is VERY different than any other doc I've been with. I like him a lot, but I don't know how much he knows about Celiac. I meet with him in a couple weeks. I also suffer from muscle spasms and am intrigued to know if they will...
  23. SuperBeck

    ARCHIVED Doctor In Raleigh/cary, Nc

    SuperBeck replied to Dana's topic in Doctors

    Hi Dana, I'm in Raleigh and working with a rheumatologist at NC Allergy and Arthritis Clinic. (I led him to Celiac, though, so it's yet to be seen how thorough he is with me ... I'm taking the initiative to change my diet.) I have an idea: You could call Whole Foods and ask if they have any resources for Celiac you could talk with (on staff or speakers...
  24. SuperBeck
    Thanks for the replies. I checked and it appears Flexeril is gluten-free. I'm never taking it again! (I would only use it once in a blue moon when the muscle spasms were real bad.) OH Yes PLEASE, I'd love the beginner's kit ;O) WOW!!!! I hadn't thought about lipstick. I was wearing lipstick today ... Covergirl. Is there a particular brand are safe? Is...
  25. SuperBeck
    Hello, Can y'all please share with me what to expect during the first few weeks of stopping Gluten? I have no idea what to expect. So far, I feel quite exhausted and have been having palpitations and changes in heart ryhtym. Is this normal? I read someone posted that if they eat gluten they feel dizzy and out of it? That happened to me today. I was at...
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