ShelleyG

I agree with person who spoke about FODMAP as I had SIBO which is easily tested and can improve with gluten free but better with FODMAP. I also was diagnosed with NCDS and have also gone off fructans which has improved intractable SIBO AND NCGS.

but obviously get tested for celiac first while you still have antibodies that could be measured or not.

So I had all of the symptoms your speaking of ( also thought I had MS) for 18 years but I also had SIBO (small intestinal bacterial overgrowth) and was diagnosed in UK with NCGS. Which to them is an umbrella term, UK doc told me, for gluten encephalitis ( brain lining inflamed) and gluten ataxia (balance). I couldn’t get a US neurologist to diagnosis me.

Head of neurology at Dartmouth didn’t even ask about my diet before telling me I wasn’t NCGS ( I had no antibodies) because I had been on gluten-free diet for 7 years.

things that helped me are: gluten free diet , FODMAP diet WITHOUT FRUCTANS.

im also on Meds because I have permanent brain damage, abnormal EEG’s and MRI’s that US doctors say are about “ atypical migraines “ but UK doc (who specializes in NCGS, Dr Professor Marios Hadjivivassiliou
Consultant Neurologist
Academic Dept Of Neurosciences, University Of Sheffield) said that is also how NCGS brains look.

im also seeing motility Gastroentrologist at Beth Israel who has me on antibiotic Xifaxin.

My SIBO has improved after going off fructans.

They ( SIBO and NCGS) seem some how part of same thing in my case.

good luck