hiveman

I just realized that you and I had swapped stories already in other posts... sorry about that. I was doing a new search through the forum and hoping there were more people with the same issues but I guess we are the only two out there with this (think of those odds... maybe we should play the lottery). I've been in pain the past couple of days and I tend...

Me too... search for my posts and you'll get an idea of my situation (hiveman). I still don't believe I really have celiac disease. I think the doctors are so excited about diagnosing it as the newest "fad" that they close their mind to anything else. I feel the same way I did before going gluten-free and now I'm the guy with severe angioedema/hives/pain...

Ok... here it is. I was diagnosed with celiac disease in February 2006. I have been strictly gluten-free ever since. I have had follow-up blood tests that show the antibodies have been gone since going gluten free. My doctors tell me I am doing a good job with the gluten free diet. Here's the thing: I feel NO DIFFERENT!!! My issue wasn't anything to...

This is a good site. I'm thinking angioedema has nothing to do with celiac. I've been very gluten free for 8 months now and was having a good run without any hives or major angioedema. I took aspirin one night for a headache as I can't take Ibuprofin and I'd heard tylenol wasn't good for my liver. On my way to the celiac support group in Glens Falls ...

Thankfully my wife doesn't use lipstick so no worries there but I have read about that... good advice for those who use it. I had another thought last night... it looks like Juliem is avoiding soy and Ursula mentioned soy as well. Add to that Girl Ninja mentioning that she gets migraines and we come to my next observation. Yesterday I ate at a Natural...

Another joins the ranks of those of us with weird hives and swellings... welcome Robbin... I too wondered about fibromyalgia. The angioedema thing is what my allergist called the swellings... again, deep tissue, painful, under the skin welts with our without discoloration... and yes, sometimes small 1 to 2.5 inches and other times a little larger. The one...

You've been very good about helping me realize I'm not alone in this condition. I too get both angioedema and hives... I limped around at work the other day because the pain was so great. I am sick of trying to explain this to people so I just tell them I bumped my knee on the table... it is much easier. My first major outbreak was angioedema only and...

Thank you, thank you, thank you... you just described me perfectly (even though you were describing yourself, ha, ha)... Everything you mention has been my problem. I actually sat in a meeting one day with hives all over my face, limping because of my legs with welts/swelling and a blown blood vessel in my eye (ever have that happen? I think it was that...

Do you get it in localized areas too? Today I have a welt/hive/swelling just above my kneecap that is so painful I lift my leg with my hands and then limp around... this is pretty typical. By tomorrow it will probably be gone and I'll have a different one on my foot or somewhere else. To look at me you wouldn't notice the one on my kneecap but on occasion...

My liver enzymes are for the most part better but my alk phos level is still around 320 when I'm told it should be less than 180 or so. I hope it isn't Crohn's... I would think it would have occured to one of these GI guys so far... I've been using the docs from the University of Vermont / Medical Center of Vermont most recently... there really aren't any...

Thanks for the responses... I did do the elimination thing with all foods but I didn't try the soy thing yet (if it is soy it would be small amounts since most things I eat do not have soy/soy products... I'm getting good at reading the labels). I checked all shampoos, deodorants, toothpaste etc. and nothing there. I will change my toaster but I haven't...

Ok... I'm new to this whole thing but here goes. I'm hoping somebody out there has a similar situation as I am going nuts with my problems. 37 year old male with development of severe chronic hives in December of 2004 (yes, I'm still suffering). Also accompanied by terrible angioedema to the point that sometimes my arm could use a sling for the pain and...