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sore joints

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Everything posted by sore joints

  1. sore joints
    Hi! So here's the deal. I (the mom) am celiac. My daughter was tested through Enterolab and the test came back positive. I then had a blood test done through my doctor which came back negative. There is a new at home test available in Canada called the Biocard. We did the test today and it showed negative. She doesn't have many symptoms so I don't know what...
  2. sore joints
    Hi everyone, So I've been off gluten for a year. Always had atypical symtpoms and am still waiting for my appointment with specialist. Anyhow this summer I've been glutened by accident and my reactions seem to be getting worse. For the past two days I've had weird stomach aches (as though I've been punched), and very bad pains in my lower back. I've also...
  3. sore joints
    O.K. here's the deal. I'm celiac and am concerned about my daughter. She had the enterolab stool test done and it came back positive. We're in Canada so the enterolab test doesn't count for anything. She had the blood work done and it came back negative. However it did show that her immunoglobulin is low. Does this mean anything? Anyone know? Thanks, Alison
  4. sore joints
    O.K. probably another stupid question but I'm still just not getting it! Since I'm still waiting to see a GI (14 mth wait) I can't ask anyone else. Everyone on this board has been so helpful. Sorry though for another question. If someone is gluten sensitive and does NOT stay off of gluten, could they potentially become celiac due to damage being done to...
  5. sore joints
    I'm wondering if any of you Canadians (esp. in Ontario) have taken their Enterolab tests to either their family physician or G.I. and if so what sort of response they received. I have results (positive) for both my daughter and myself and I'm worried that these doctors are going to think I'm crazy! Thanks Alison
  6. sore joints
    Hi everyone! I (the mom) tested postive for gluten sensitivity through enterolab. I had the celiac blood test (Canadian) done for my daughter through our Doctor and her test came back negative. Although it was negative I still went ahead and had the enterolab stool test done. It came back today as positive with a result of 18. My question is; what do I...
  7. sore joints
    Triphasil is fine as well.
  8. sore joints
    Good morning! Does anyone know of any GIs in Ontario that support Enterolab test results? I'm waiting to get in to one and the wait is a year and I'm worried that after such I long wait I'm just going to find out that the doctor doesn't believe in a positive test result from Enterolab. Any experience with this?
  9. sore joints
    Hi there! Another Canadian here! I'm relatively new to the forum so it's nice to see that there are other Canadians who are a part of it. Welcome! Alison - Guelph, ON
  10. sore joints
    Hi everyone! I am newly diagnosed and I'm wondering what to do about my kids. Neither has any symptoms. My daughter who is 21mths is low on the weight chart (3rd percentile) and is speech delayed. Do any of you know if there is a connection between language delay and celiac disease? Alison
  11. sore joints
    Hi everyone! Anyone know how old kids should be before they are tested by Enterolab? Is 20 mths too young? Alison
  12. sore joints
    Hi Suzie, I have a 20mth old daughter who is at the bottom of the growth chart but no other symptoms and a son who doesn't have any symptoms that I know of. Should I have them checked or for symptoms to appear? Thanks for your letter. I'm feeling a little overwhelmed by all of this. Grieving all the foods I love but will never be able to eat again!...
  13. sore joints
    Hi! Anyone know where I can buy Cherrybrooke Farms (cake and cookie mixes) in Southern Ontario? Alison
  14. sore joints
    Hi Suzie, I can't get into a GI for at least a year and my blood test was not covered by OHIP but was covered by our insurance company. I decided not to wait for the GI and was tested by Enterolab. It came back positive so I'm glad I had the testing done and didn't wait for the GI. Now I just have to decide what to do about my kids. Thanks for writing...
  15. sore joints
    Good morning everyone! I have probably a stupid question. Is eating meat safe if the animal has been grain fed? Also, anyone know if Coke is gluten-free? Thanks, Alison
  16. sore joints
    Good morning everyone! I just received my test results back and I could use some help understanding all of this. My stool test result from Enterolab gave a Fecal Antigliadin IgA result of 12 and it was recommended that I go off of gluten permanently and have my family members tested. First of all, does this mean that I am Celiac or do I need to have an...
  17. sore joints
    Hi Nicole, Thanks for the reply. What is lyme disease. A few people have mentioned it to me and I really don't know much about it. Any ideas? Alison
  18. sore joints
    Good morning everyone! I'm having a horrifically bad day. I've been having a flare up for the last few weeks and my fatigue is just unbearable today and I actually had a good sleep last night. I woke w/ a migraine and complete and utter exhaustion. Joint and bone pain are really getting to me. Just when I think the flare up has passed, one or more of my...
  19. sore joints
    Hi Elizabeth, I'm still new to this. What is CF. I also suffer from bone and joint pain. This started following my pregnancies. It is usually in my hands, but also in my elbows and shoulders and occasionally jumps to other parts of my body. I feel like I'm going crazy b/c one minute it could be fine and the next quite painful. Are you thinking it is gluten...
  20. sore joints
    Does anyone else have any experience with bone aches and joint pain. I had what I call a flare up in Nov/Dec and for the last two weeks I've been experiencing another. In between I've had the occasional pains - usually in my hands. They started after my first pregnancy and got worse after the second. I'm exhausted b/c I'm not sleeping well b/c I'm uncomfortable...
  21. sore joints
    Hi again! I was able to get my test results back from the Doc. Can anyone tell me what they mean. All she said was that they were mildly abnormal for Celiac. Gliadin AB: IgA= 7 Gliadin AB: IgG= 20 HI Tissue Transflutaminase IgA = 5 I've order a test through Enterolab. Looking forward to finally getting to the bottom of this. What is DH? THANKS...
  22. sore joints
    Hi! Thanks for the great replies. I've been tested for MS, Lupus, Rheumatoid Arthritis, Bone Cancer, and who knows what else. I will check out enterolab and do my testing through the naturalpath and if all else fails, I guess I try going gluten free to see if I feel better. I have no idea what this type of diet entails. I guess I'll have to spend some time...
  23. sore joints
    Hi everyone! When I read all of your letters, I feel guilty because I'm not suffering in the same way as most of you and can't imagine what all of you are going through. For 3 years now I have been suffering from bouts of joint and bone pain. It started following pregnancy. I've been through every test known. Now I also have very low ferriton and fatigue...
  24. sore joints
    Hi everyone! I've just recently been referred to a GI. Anyone know how long it takes to get an appointment with one in Ontario. Should I expect a long wait. What about the endoscopies? Is there a long wait for those as well. Anyone from Guelph?
  25. sore joints
    Hi everyone! I have no idea what I'm doing so I don't know if I'm posting this correctly. Since pregnancy I have been suffering from bone and joint pain. I also have very low ferritin levels and am weak and tired. I have also always had some stomach problems but have never been able link it to any foods. Anyhow, I was tested recently for celiac...
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