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farofa

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Everything posted by farofa

  1. farofa
    hi. thought i'd jump in here: my vitamin d levels were also very low and are what clued doctors into the gluten problem. i had a severe allergic reaction to d2 (drisdoll). please stop taking it and take d3 instead. doctors should not be prescribing the synthetic d2 as people are often allergic to it. i continue taking 4000iu d3 daily with calcium...
  2. farofa
    Thanks, all. Natural Flavorings is a confusing one. I guess sometimes its ok, sometimes not. Merely a red flag. I looked it up too on their website: Are Silk products okay for people with wheat and gluten allergies? Much like those folks with dairy allergies, there are people who have a hypersensitivity to wheat or wheat products – like gluten. ...
  3. farofa
    Hi, Does anyone know if Silk soymilk is gluten-free? The ingrediants list contains "Natural Flavorings". A friend brought a dessert over today that she thought I could eat but there was "barley and wheat extract" in the description of the soymilk it contained. This led me to look at the ingredients on my own soymilk container. Thanks for your...
  4. farofa
    Hello, I've queried EnteroLab regarding what I'm told is a mild deficiency and their reply was: "Unfortunately, your IgA deficiency will have an affect on our antibody tests. Depending on the severity of your deficiency, you could come up with a negative result but might still be positive." Does anyone else have low IgA and IgG - do you know what a...
  5. farofa
    Has your daughter been tested for PCOS (Polycystic Ovarian Syndrome)? Its very common and not too difficult to treat. Irregular periods at such an early age are a sign of something significant and its worth doing a medical workup to rule this out. As someone who has suffered tremendously for the past 25 years from terrible periods, which only got worse...
  6. farofa
    Open Original Shared Link This link is for the bios of the staff at the Columbia Celiac Center. I actually had an appointment with Susie Lee some months ago but my endo and my gp convinced me to see a GI — who was good but not too interested in celiac sprue. I'm glad to hear she's a good doctor.
  7. farofa
    Thank you for your comments. I feel empowered by this community!
  8. farofa

    ARCHIVED Miscarriage

    farofa replied to farofa's topic in Related Issues & Disorders

    Thanks for your reply.
  9. farofa
    Hi, I think its a good idea to tell the doctor what you'd want. I'd suggest being put out for it. They did not give me enough demerol and had to readminister it during the procedure. I was awake and aware through all of it, including the discovery channel tour of my esophogus and small intestine. I gagged quite a bit and was very sore the next few days...
  10. farofa

    ARCHIVED Miscarriage

    farofa posted a topic in Related Issues & Disorders

    Hello, Miscarriage is a very common event for those of us with gluten intolerance. But it is difficult to find information especially in such early stages (often women don't know they are pregnant in those first two weeks). Could you share your experience of loss (and any pertanent literature you may have found) here and your successes conceiving once...
  11. farofa
    Hi, Has anyone on this forum had the good fortune (or bad ) to see Peter Green or any of his associates at Columbia? How did you feel about the experience? Has it been helpful to you? Any feedback would be greatly appreciated. Alex
  12. farofa
    Thank you, Rinne. Oh, Robbin. It sounds like you've been through the ringer. Your experience, and Ursula's, have allowed me to feel a little more confident. Would you mind telling me a little more about how you were eventually able to conceive. If this is too private, I understand. I've sent Enterolab an email. I hope they will respond...
  13. farofa
    Dear Ursula, Thank you so much for your reply. I've been digesting the information you gave me for the past day and think it has been most helpful. I'm so sorry about your experience. You have unusual strength to have survived so many miscarriages and to have brought a family into the world still. And now to be offering advice and knowledge from your experience...
  14. farofa
    Carla, Thank you so much for such clear answers. Of course, they bring up more questions... Would it explain esophogitis or swollen intestines? Is this symptomatic of Celiac? I ate a piece of toast and some cake the day before the test. That was it. Good idea. I'll try to reach them. I just read Dr. Kalish's page [Open Original...
  15. farofa
    I can't really explain. I have read a lot about it and it keeps going out of my head. It has to do with Immunodeficiency disease. IgA and IgG immonoglobins have something to do with protecting the body from infection.
  16. farofa
    Hi, Thank you both for the instant replies. I do feel welcome. For the sake of clarity: I was on a gluten free diet (not perfect, but gluten free all the same) for six months prior to doing the endoscopy. About 15 years ago wheat, rice and peanuts allergies were noted. No one suggested I do anything about it, so I didn't. I don't understand the...
  17. farofa
    duplicate: deleted
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