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Support Groups
This category contains celiac disease support group information, both international and within the United States of America, including local and national organizations and their contacts.
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Recent Activity
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- marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications3Bee balm lipbalm not gluten free
To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten. -
- Mari replied to Jmartes71's topic in Coping with Celiac Disease4Related issues
jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...- 1
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- Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Patiently Waiting to See Results
It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point. -
- catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Patiently Waiting to See Results
My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...- 1
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- Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease4Related issues
I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...- 1
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