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Bloodwork Still Showing Gluten Present

Posted by DCE, 27 February 2012 · 179 views

Hi,

I have 2 daughters that have celiac for a little over a year now. I just took them in to get bloodworm done to see how there levels were. My daughter Colleen who goes to preschool 3 days a week came back ok but my other daughter Delaney came back a little high she is in first grade. I'm so frustrated because my husband and I are so careful double check everything. Even at school her teacher is always checking in with me. I donít understand how the blood work came back high. Both girls eat the same things. The drs want to have her tested again in 6 months to see if there are any improvements. I have talked to my daughter to see if she had taken any food from someone else went through everything with her. We have a talk in the car every morning to make sure she knows only to eat her food. I feel like a failure and its killing me because I cant think of anything. We double check on lotions, shampoos, soap, sunscreen etc. I'm at a lost. Has anyone else gone through this. Any help or ideas is much appreciated.

Thank you,
Amy McNamara

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My daughter was diagnosed with celiac disease recently. Have you thought of less obvious places for gluten? Some are lip balm (chapstick), toothpaste, medicine (check with pharmacist), playdough, art supplies, (if she puts her finger in her mouth after touching something with gluten, she could contaminate herself), chicken (KFC and off-brand raw chicken were hidden sources that made my daughter very sick - stick only with name brands like Tyson, etc.). We found an ice cream that had no gluten ingredients but it made her very sick; must have been cross-contaminated during processing. Starbucks (and many other establishments) may cross-contaminate by not thoroughly washing blenders or other items before making your order. Try to stick with things labeled gluten-free until you get her gluten levels down. Best of luck. It is so hard when it's your child who is affected instead of yourself.
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