This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.
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What are the major symptoms of celiac disease?
Celiac Disease Symptoms
What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic)
Celiac Disease Screening
Interpretation of Celiac Disease Blood Test Results
Can I be tested even though I am eating gluten free?
How long must gluten be taken for the serological tests to be meaningful?
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
Is celiac inherited? Should my children be tested?
Ten Facts About Celiac Disease Genetic Testing
Is there a link between celiac and other autoimmune diseases?
Celiac Disease Research: Associated Diseases and Disorders
Is there a list of gluten foods to avoid?
Unsafe Gluten-Free Food List (Unsafe Ingredients)
Is there a list of gluten free foods?
Safe Gluten-Free Food List (Safe Ingredients)
Gluten-Free Alcoholic Beverages
Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?
Where does gluten hide?
Additional Things to Beware of to Maintain a 100% Gluten-Free Diet
Where can I buy gluten-free stuff?
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I am SO incredibly frustrated right now with one particular skin care company that I may end up screaming. Oh what the heck, I AM going to scream, "AAAAAAAAAARRRRRRRRRRGGGGGGGGGGGHHHHHHHHHHH"! Well, that was mildly cathartic.
So here's the deal. I am the manager at an upscale day spa in the San Francisco Bay Area. We carry three skin care lines and one makeup line in my office. These are both retail and professional lines. The Monday after I was diagnosed I went into work and called the reps for all of the companies we work with. I got an immediate response from the make up rep, and two of the skncare reps got back to me within 24 hours with a list of the products they carried with gluten in them. This was fabulous as not only was I using several of the products for personal care, but I am handling them at work constantly as well (now I wear gloves if I need to work with the glutened products).
The third company HAS STILL NOT ANSWERED MY QUESTION!!!! I have called the rep repeatedly...no response. I have emailed the company...a wishy washy response, but nothing definative. I emailed the head honcho of the company...no response. I mean really, this is just ridiculous! Obviously I am not personally using any of their products anymore, and I am taking precautions when handling them at work, but the frustration has not been alleviated. I am absolutely gobsmacked that a company would not only fail to respond to me as a consumer, but also fail to respond to me as a retail outlet as well. What jerks!
I just wish I could get the owner to drop the line, but at the end of the day she really does not see what the big deal is. Oh well, I will just make do with telling all of you that MD Skincare could really care less about their consumers. Hey...that felt better than the scream!
I have spent the last several days working, taking care of the kids, and helping out with my mother in law who had a mild stroke last Sunday. No jokes about how she is trying to poison me with flour today...it would probably be in poor taste!
On a positive note though, I got a package this morning from my mother (she lives in a different state). In it was a liscense plate frame for my car. I almost peed my pants I was laughing so hard. The top part of the frame says "Seitan" and the bottom part says "is evil". The bottom phrase has on both sides a picture of a sheath of wheat in a red circle with a line through it. The card said, "Say it loud and say it proud...I have Celiac and wheat sucks!" My mother is an absolute HOOT!
Happy Friday to you all and may you have a wonderful weekend!
Ah Tuesday...the day of the week that my husband and kids look forward to the most. Why, you may ask? Easy, it is what my son calls their "Gluten Filled Tuesday". This is the day of the week that the three of them go out and eat whatever they want for dinner and do not have to worry if it is safe for me, or if there is anything on the menu I can eat, and to indulge in the things that we just don't get at home anymore.
For instance, last week it was deep dish pizza. Tonight, it's Chinese. This is the first of their meals out that I actually find myself envying. I LOVE Chinese food, any and all of it. Problem is, if there is a style of cooking that is not condusive to eating gluten free, this would be it. My husband is Chinese and speaks the language fluently, when I was diagnosed he talked to a cook at one of the best resteraunts in the Bay Area. The man flat out told him good luck with eating gluten free Chinese, there's wheat in almost all the noodles and just about every sauce used has soy sauce in it. At least I know and I won't find out the hard way.
So tonight I am making a tofu and spinich scramble. Maybe I'll flavor it with a little gluten free soy sauce!
Let's see, it is 12:30 in the morning and I have to be up and bright eyed and bushy tailed for work tomorrow morning. Why am I up? Because I have stomach cramps that are making me feel like I am about to give birth. Since 7:00 last night. At this point I find myself praying for D...at least then it will get out of my system and the flipping cramps will stop.
Went to dinner at a local Vietnamese resteraunt that is one of the few places I have been able to eat at since my dx. Ordered what I always do...shrimp and lemongrass beef over rice noodles (SO yummy!). The shrimp is coated in rice flour and then grilled. About half way through dinner my husband started telling the kids to hurry up and finish so we could leave. He tells me that he KNOWS I am going to get sick because I was looking a little foggy and being snippy. I thought he was crazy...until the cramps hit. Oh yeah, and the lovely distended belly bloat that caused one lovely elderly lady to ask me (as we were leaving) when I was due (talk about insult to injury).
On our way out, the hubby swung by the kitchen to ask what they cooked the shrimp in tonight. Chef tells him that they used white flour because they were out of rice flour, and he'll see us next week. Oh joy! Next time I'm sticking to the beef and rice noodles.
...I finally signed up here and have spent the last couple of days trying to figure everything out! The information I have recieved from the posts and blogs have been incredible. Thank you for that everyone!
My story, condensed and in a nutshell, is this:
I have had digestive problems for probably 11 years or so. Nothing too serious, just the occasional flair up of what I called my "sensitive stomach". Almost 5 years ago I had an attack that lasted for about 4 months. In that time I lost almost 40 pounds and got to the point where I could not leave my house. Even taking the kids to school and picking them up became a major issue for me. I was a wreck, my husband was a wreck, my children were wrecks. I repeatedly called to make an appointment with my doctor only to be told to take Pepto Bismal (what?). It got to the point where I wouldn't eat anything save for a bowl of Cream of Wheat or oatmeal (plain of course) and an Ensure. Just to keep THAT down, I would take between 8 and 10 Immodium tablets a day.
Finally got a doctor's appointment, and they couldn't figure out what was wrong with me. They gave me a default diagnosis of Colitis, as in: "we cannot figure out what it is, and it LOOKS like Colitis, therefore it must BE Colitis." Great medicine, huh? So I was given a list of foods to avoid (fried, spicy, blah blah blah) and sent on my merry way. The problem was that it never really went away. I would avoid the foods I was supposed to and when I would have a flare up would revert to eating my Cream of Wheat and oatmeal...only to still feel awful.
So we got a new medical plan, and I got a new GI doctor, and after years of misery I got a new and improved diagnosis of Celiac on May 30, 2007. Within the first couple of weeks I have seen a difference in my body. The constant rumblings in my stomach have almost disappeared as have the almost contant trips to the ladies room. Hallelujah!!!
I have still had some problems with bloating and discomfort and went through my food diary to see what I have been eating that would cause it. AAAARGH!!! Say it isn't so...I have been eating cheese, and lots of it...I LOVE cheese, any kind, any way. I have always said I could give up chocolate before I could give up cheese, guess I jinxed myself cause it's the cheese that is going. So now I can add that to my list of things that I just cannot have anymore!
So there's my story...boring, huh? Next one should be a tad more interesting. Intrigue (does the mother in law really not get it, or is she trying to contaminate me purposely?!?)! Bias (my brother loves beer so assumed it will be what I miss the most, thereby leading him on the ultimate gluten free beer taste test!!!)! And bake goods (what's up with all the palm oil people?!?)!